2013 National Child Count is Published

Posted on October 15, 2014

1 Comment

Mark Schalock - NCDB Staff

Greetings!  We have just posted The 2013 National Child Count of Children and Youth who are Deaf-Blind.

As in past years the report includes a narrative section that summarizes trends in the data over the past several years and identifies a number of implications from a national perspective of these trends. This narrative is followed by the detailed tables that display the results of the 2013 Nation Child Count of Children and Youth who are Deaf-Blind on a state by state basis.

We have also updated the child count mapping application to include the 2013 data.

Selected Results

  • The prevalence of CHARGE Syndrome continues to increase significantly. In 2013 there were 864 children and youth identified as having CHARGE Syndrome.
  • The number of children identified as having received cochlear implants has increased from 167 in 2005 to 914 in 2013, more than a five-fold increase during this time period.
  • Over 60% of the children and youth in school age special education are receiving their education in local schools, with 65% of elementary school aged children being served at least portion of their day in a regular classroom in their local school.
  • One quarter (26%) of the children and youth reportedparticipate in the regular curriculum as indicated by participating in statewide assessments tied to regular grade level standards.  This percentage increases to 42% when only those children and youth are considered who are at the age and/or grade level for which state assessments are administered.
  • While educational placement does not determine access to the regular curriculum, nearly 75% of those students taking state assessments tied to regular grade level standards were in the regular classroom some portion of their day.
  • The number of youth graduating from high school with a regular diploma has doubled (from 99 to 199) in the past seven years. 

Some Implications

  • The continued trend toward educational placement in inclusive settings, especially at the pre-school level, is significant and positive for children and families. The trend does, however, have profound implications on the needs for information, resources, and access to expertise in deaf-blindness being available at a local level.
  • While access to the general curriculum and graduation from high school has improved for the population of children and youth who are deaf-blind, significant efforts are needed to expand these opportunities.
  • The apparent continued under-identification and referral to deaf-blind programs of very young infants and children remains an important need. Infants and toddlers greatly benefit from having access to expertise in deaf-blindness in order to develop and implement appropriate services that address the impacts of dual sensory impairments. Further, parents and families of these infants and toddlers can benefit from supports and networks established within states.
  • Trends demonstrate that what has historically been one of the lowest incidence, yet heterogeneous populations, continues to become even more so as our nation’s population becomes more diverse ethnically, racially, culturally and even linguistically.
  • The numbers of students on the count who are exiting Part B every year, either having received a diploma or certificate, simply aging out, or transitioning to adult services, post-secondary education, or employment has important implications for the continued development of effective post-secondary supports for this population. This is especially the case for the growing numbers of young adults receiving a certificate of completion or diploma, which has grown from 160 to 280 over the past 7 years.
  • Finally, technology is having an increasingly important place in the lives of children and youth who are deaf-blind. In 2013, 45% of the population was identified as making use of some form of assistive technologies not related to vision or hearing.
  • The numbers of children/youth with cochlear implants has quadrupled over the past four years. This increase, spanning the age ranges from infants to young adults, may require significant program development within the Deaf-Blind TA Network to provide appropriate supports for this growing population.

 If you have any questions about the 2013 report, or previous reports or trends please feel free to contact me at (503-838-8777)

Upcoming 2014 Change in the Deaf-Blind Child Count

In the coming weeks we will be releasing the updated materials for the 2014 Nation Child Count of Children and Youth who are Deaf-Blind.  Please be advised that we will be adding Intervener Services to the 2014 data collection on a pilot basis.  For further information please visit the Child Count Forum

Comment (1)

Thanks for the summary of the results for the 2013 count. It's helpful to have these summaries when we share this information with others. I appreciated reading specific information about results, changes from previous years' counts, and implications for the local service providers and deaf-blind service providers providing TA to those teams.

Julie Maier

Posted Oct 16, 2014 by Julie Maier

Please login.

You must first login before posting your comments here.

Login or Make a Profile

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

Tour This Page Website Help
Help for this page

Help Guides & Tutorials