EI&R Initiative: Seeing Results and Planning Part C Intervention Practices

Posted on September 28, 2016


Megan Cote - Project Specialist, Early Identification/ Referral & Family Engagement 

megan cote

In January of 2015, I began working at NCDB as the initiative lead for both Early Identification and Referral as well as Family Engagement.  At that time, thanks to the hard work of Barb Purvis and others, the Self-Assessment Guide and Action Planning process had been created and states who were using it were seeing incredible jumps in the number of infants and toddlers being identified and referred in their states.  This last year, we offered a webinar series detailing some of these successes, inspiring even more state deaf-blind projects to give the self-assessment process a try.  And guess what?  Even more infants and toddlers were identified!  What does this tell us?  Using this targeted process works!  If you are just beginning to think about boosting your early identification and referral efforts, then get ready for an awesome year with this initiative! We are excited to talk about our upcoming plans, in particular the development of a Part C intervention framework and another webinar series.

The Self-Assessment Process for State Deaf-Blind Projects:

The online Self-Assessment Guide allows state deaf-blind projects to analyze state and national data, gather information about systems in their state serving children birth through two years old and reflect on specific issues that impact identification and referral of infants and toddlers with combined vision and hearing loss.  If you have yet to go through the guide, I urge you to do so!  You’ll be surprised by how much you learn and feel more confident creating an action plan to target the needs in your state. If you’d like help getting through it, feel free to let us know!  We are here to help.

Evidence of the Effectiveness of Using the Self-Assessment Process:

As of Fall 2015, 49 states have used the Self-Assessment Guide, have targeted a system and are beginning to implement one or more of the four key evidence-based practices.

In 2011, 9 states participated in the pilot of this process.  Here are the results from this group:

  • This group had collectively identified 138 infants and toddlers (birth-2) = 22.7% of children in that age range
  • In 2014, their collective birth - 2 numbers increased to 209 = 35.3% of children in that age range identified nationwide.
  • In the 2014 report these 9 states are responsible for more than a third of the birth-2 kids on the current national child count!

When you combine these 9 states with the additional states who presented in the EI/R National Webinar Series in 2015-16, the numbers get even better!

  • Of the 349 newly identified infants and toddlers on the 2015 Deaf-Blind Child Count, 174 (49.9%) were from this group of 16 states.
  • These states were especially effective in identifying infants under one year of age
  • Nearly two-thirds of all infants (64.6%) newly identified in 2015 came from this group.

Part C workgroup is building an intervention framework:

In early 2016, NCDB formed a Part C workgroup to begin to look at intervention practices for Part C service providers and coordinators.  Why? Because now that states are finding the infants and toddlers earlier, we need to have materials to help build the knowledge and skills for the service providers.  Thanks to the help of Carol Darrah (GA) and Emma Nelson (VT), on March 29 we conducted a 2-hour webinar for providers in Pennsylvania.  The webinar was turned into a training for Part C providers and can be found at this link.  Page down to Service Delivery and you will see an icon for the presentation, Interventions for Children with Combined Vision and Hearing Loss. 

On May 17, Lisa Poff (Program Coordinator for Indiana Deaf-Blind Services) hosted aday long training in Indiana for their Part C providers and coordinators.  The video and PowerPoints from this training, as well as the training from Pennsylvania, are being embedded into a Part C intervention framework along with additional resources.  Once done, the framework, based on Division of Early Childhood Recommended Practices and early childhood developmental domains, will be shared with the state deaf-blind projects to customize the support and training they provide to Part C providers in their state.  Watch for a draft in the next few months. 

Webinar Series for 2016-17 academic year:

This year, based on input from Summit 2016, we plan to offer four national webinars.  Experts from the following 4 targeted systems: Part C, EHDI, Medical and Community Programs will present innovative solutions that they’ve created to improve identification and referral efforts for infants and toddlers with combined vision and hearing loss.  First up is the Community Programs webinar where Dr. Linda Lawrence and Dr. Anne Nielsen will present.  Dr. Nielsen is the Project Coordinator of KanLovKids.  This project offers pediatric low vision collaboration clinics and low vision evaluations to children from ages birth through 21 who reside in Kansas.  All services are supplementary to the child/student's primary eye care provided by their local ophthalmologist and/or optometrist.  Linda Lawrence, an ophthalmologist who works extensively with infants, toddlers, and school-aged children diagnosed with Cortical Visual Impairment or children who are visually impaired with additional disabilities conducts the Pediatric Low Vision Collaboration Clinic (PLVCC).  This webinar will be held on Wednesday, November 9th at 12 noon PST.  Details for joining this webinar can be found here.

If you have suggestions for other presenters who work creatively in your state to provide real solutions for infants and toddlers, please let us know as we make plans for the other webinars targeted towards Part C, EHDI and the Medical Community.

We look forward to seeing you at the upcoming webinars and in continuing to facilitate the great sharing that is happening.  It truly is the efforts of state projects that are shaping the way that we move forward.

Comments (2)

What an incredible story of success for our DB TA network – a story that continues to unfold during Year 4 of our grant cycle! State projects using a similar product (EI&R Toolkit) developed to address a common need – finding children, early! State projects getting and giving support to one another with assistance as needed from the national center – partnerships that make us more and more effective – achieving outcomes! Then, with use of the process and conversations about ongoing struggles, uncovering still more solutions to engage in through even more partnerships – building a Part C intervention framework and upcoming webinars to be delivered by experts in service systems (Part C, EHDI, and the Medical Community) we are all linked to in our DB TA. What a great plan unfolding, Megan!!

Linda McDowell

Posted Oct 4, 2016 by Linda McDowell

Great post Megan. This is fantastic!

Mike Fagbemi

Posted Sep 30, 2016 by Mike Fagbemi

Please login.

You must first login before posting your comments here.

Login or Make a Profile

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

Tour This Page Website Help
Help for this page

Help Guides & Tutorials