Usher Syndrome Coalition
Posted by , 2 Mo. Ago
Jan 25, 2017 12:00pm PST
Nancy O'Donnell, Director of the USH Trust Registry will provide an overview of the mission of the organization, the types of support they provide to families of children with Usher Syndrome, and share information about their main product, a registry known as the USH Trust.
Webinar Connection Details
No registration is required.
This webinar will be recorded and closed captioned.
On the day of the meeting:
- Connect your browser to: http://hknc.adobeconnect.com/ncdb