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Usher Syndrome Coalition


This list reflects trainings and events sponsored nationally and across the network.

Usher Syndrome Coalition

Posted by , 6 Mo. Ago

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Jan 25, 2017 12:00pm PST

Nancy O'Donnell, Director of the USH Trust Registry will provide an overview of the mission of the organization, the types of  support they provide to families of children with Usher Syndrome, and share information about their main product, a registry known as the USH Trust.  


Webinar Connection Details


No registration is required.

This webinar will be recorded and closed captioned.

On the day of the meeting:

  • Connect your browser to: http://hknc.adobeconnect.com/ncdb
  • Choose the Guest option, type your name, and click the Enter Room button.
  • Phone connection information: We do not use VoIP for these meetings. The meeting room has a call back feature. This is the best way to connect. If calling in by phone, manual dial is: US (Toll Free): 1-888-850-4523, Participant Code 753259#
  • For any questions or issues connecting, please contact Robbin Bull.

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