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This list reflects trainings and events sponsored nationally and across the network.

USH Connections Conference 2019

Posted by , 6 Mo. Ago

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When: 

Saturday July 13, 2019 

7:00 AM - 5:00 PM (Evening Social to follow)

Where:

Philadelphia Marriott Downtown

1201 Market Street, (guest entrance at 1200 Filbert Street)

Philadelphia, PA 19107

Description:

The Usher Syndrome Coalition's one-day conference, the USH Connections Conference, is the largest annual gathering of the global Usher syndrome community. Join them for this incredible opportunity to learn the latest on developing treatments from leading USH researchers while connecting with hundreds of affected individuals, their families, and professionals serving the deafblind community.


View Rates and Register Here 

Meet and Greet: 

Please join Kadie Trauger and Danay Trest, who both have Usher syndrome, for an informal and fun social evening. This is a chance to meet, make connections and share information before the conference activities begin on Saturday.

WHEN: Friday, July 12, 2019
TIME: 6-8 PM
WHERE: TBD

Please note: There will be no SSPs or interpreters provided as this is an informal gathering.

Contact Kadie Trauger for more information: kadietrauger@yahoo.com  


Questions?

Toll Free: 1-855-998-7437 (1-855-99-USHER)

Toll: 1-978-637-2625

Videophone: 1-631-533-9621

Krista Vasi, Executive Director: k.vasi@usher-syndrome.org

Julia Dunning, Office Manager: j.dunning@usher-syndrome.org

Nancy O'Donnell, Director of Outreach: n.odonnell@usher-syndrome.org


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