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October 2017 News!

Family Engagement

Happy October Everyone!

Here are some amazing opportunities we wanted to share related to Family Engagement …

Calls for Spanish Speaking Families of Children with Deaf-Blindness
California Deafblind Services is offering monthly calls geared to Spanish-speaking families of children with deaf-blindness! Join them for these 90-minute teleconferences that help provide information and support on the third Tuesday of the month at 6pm PT / 9pm ET (except when indicated otherwise). Details can be found here:

A “Must Watch” Webinar called “A Parent’s Story”
Feel like being inspired? If so, we encourage you to watch a webinar recording called “A Parent’s Story.” Myrna Medina, Family Engagement Specialist at California Deafblind Services and mother to a son, Norman, with deaf-blindness, explains her experiences in the early years of her son’s life, their interactions with service systems at different stages of Norman’s life, and how they were able to cope. Here’s the link to the recording: We encourage you to share it with providers as well to give them perspective about the impact having a child with deaf-blindness can have on a family.

Free Webinar about Educational Considerations for Students with Usher Syndrome
On Thursday, October 11 @ 5 PT, NCDB will be hosting a 90-minute free webinar in collaboration with NFADB and the Usher Syndrome Coalition called “Educational Considerations for Students with Usher Syndrome.” Family Engagement Coordinators Carly Fredericks and Patti McGowan, both parents of children with Usher syndrome, along with Nancy O’Donnell, Director of the USH Trust Registry, will share personal stories and informative resources. Open discussion will follow. For more information, please go to:

Peer-to-Peer Grief Support
NCDB, in collaboration with NFADB and state deaf-blind projects, is offering a series of web-based, peer-to-peer meetings where parents who have lost a child will have an opportunity to process their grief and learn about coping strategies that have helped others. To find out more and enroll, go to: The next group will begin on January 10 (please note change of date) and run for five months. If you or someone you know has experienced the loss of a loved one with deaf-blindness, we’d love to have you join this caring community. Enrollment is free.

Friday Family Fun Facts
Every Friday the National Center on Deaf-Blindness posts a “fun fact” from a family in the deaf-blind community. The “facts” are pictures or short videos accompanied by a brief description of amazing things children with deaf-blindness and their families are doing in the home, school and community. If you haven’t checked out the NCDB Facebook page, it’s a must because you’ll get new ideas and be inspired by countless families across the network. Interested in having your family featured? Contact Megan Cote – We’d love to share your ideas and celebrate your family!

Hoping that everyone has a wonderful October!

Megan Cote

Posted Oct 2, 2017 by Megan Cote

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