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August 2018 News!

Family Engagement

Happy August Everyone!

NCDB is thrilled to announce the release of our newest Families Matter story called “Meet Paul Uribe.”  Paul, who is six years old, has combined vision and hearing loss due to CHARGE syndrome. He lives in Northern California with his parents, Angelica and Paul. He also has a diagnosis of autism and receives daily in-home ABA therapy. Always happy and energetic, he enjoys being outdoors; riding on swings, wagons, roller coasters, and horses; and playing with phones and iPads.

Angelica and Paul Sr. have made it a priority to connect with other special needs families. Several years ago they attended the CHARGE Syndrome Foundation's biennial conference in Chicago and met families and professionals from across the nation. They also communicate with other parents through Facebook groups and attend events hosted by their state deaf-blind project.

We encourage you to watch the videos to meet Paul's family and get a peek into his day-to-day life.  His family is inspiring, to say the least.  And we want to offer our sincere gratitude to his family for their willingness to share their story with the network.

Happy Viewing,

Megan



Megan Cote

Posted 10 Mo. Ago by Megan Cote

6 196 views
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Comments (6)

Added to our WA Deaf-Blind Facebook page. This is a great addition to Families Matter. Thanks!

Katie  Humes

Posted 9 Mo. Ago by Katie Humes

Loved 'meeting' Paul, thanks for sharing!!!

Laura Benge

Posted 10 Mo. Ago by Laura Benge

Julie - Thanks for helping us connect with them. How lucky you are to get to work with such a lovely family!

Megan Cote

Posted 10 Mo. Ago by Megan Cote

One more thing. I've known and provided support to this family since Paul was 2 years old and they really are just that awesome in real life ;-)

Julie Maier

Posted 10 Mo. Ago by Julie Maier

The CDBS staff has been viewing and sharing this story today. We're thrilled that a CA family was selected and the videos provide some really helpful information about CHARGE syndrome and ways families can support their child and find support for themselves. This is a wonderful addition to the diverse range of "Family Matters" stories NCDB has shared with families and the network. Thanks, Megan and Elizabeth and team!

Julie Maier

Posted 10 Mo. Ago by Julie Maier

I am so happy to see this! Thanks for sharing and thanks to NCDB for spotlighting a family with CHARGE syndrome!

Sheri Stanger

Posted 10 Mo. Ago by Sheri Stanger

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