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August 2018 News!
Happy August Everyone!
NCDB is thrilled to announce the release of our newest Families Matter story called “Meet Paul Uribe.” Paul, who is six years old, has combined vision and hearing loss due to CHARGE syndrome. He lives in Northern California with his parents, Angelica and Paul. He also has a diagnosis of autism and receives daily in-home ABA therapy. Always happy and energetic, he enjoys being outdoors; riding on swings, wagons, roller coasters, and horses; and playing with phones and iPads.
Angelica and Paul Sr. have made it a priority to connect with other special needs families. Several years ago they attended the CHARGE Syndrome Foundation's biennial conference in Chicago and met families and professionals from across the nation. They also communicate with other parents through Facebook groups and attend events hosted by their state deaf-blind project.
We encourage you to watch the videos to meet Paul's family and get a peek into his day-to-day life. His family is inspiring, to say the least. And we want to offer our sincere gratitude to his family for their willingness to share their story with the network.