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Grief Support for Families of Children with Deaf-Blindness

Family Engagement

With great thoughtfulness, the National Center on Deaf-Blindness (NCDB), the National Family Association for Deaf-Blind (NFADB), and state deaf-blind project personnel have been collecting grief resources for families related to child loss. As you can imagine, death is a very traumatic experience for families. When coupled with a secondary loss of connection to the deaf-blind community, healing can be even more challenging.

To help, we’ve created a list of resources where family members can obtain information and support:

Next, we are excited to announce the launch of a Parent and Guardian Grief Support Group. Beginning May 3, 2017 and continuing for 5 consecutive months, we will be offering a series of web-based, peer-to-peer meetings where parents who have lost a child will have an opportunity to process their grief and learn about coping strategies that have helped others. The meetings will be held on Wednesday evenings, twice per month (a second session may be offered on Thursday evenings, if needed). We are asking interested parents and guardians to commit to the entire 5-month series. Enrollment is free.

To get more information and enroll, please go to:

Or feel free to e-mail Megan Cote – or Molly Black –

Megan Cote

Posted Feb 24, 2017 by Megan Cote

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Comments (3)

Great question! That's step 2, Dee! Stay tuned...

Megan Cote

Posted Feb 27, 2017 by Megan Cote

Dee....I totally agree with you! That grieving process is more dynamic and unpredictable in my opinion. I believe even more important to have resources and support for these parents! Great suggestion, Dee!
Sherri Nelson


Posted Feb 27, 2017 by SHERRI NELSON

Megan Cote, you Rock! Thanks for working on this. This will be a wonderful resource to many families.
I was just wondering, will this resource also include resources for grieving the loss of the child's abilities? I mean in reference to the child you thought you would have, but now find that the child has multiple disabilities to address. This is a different type of grief because the child is still with you, but you still mourn the loss of the child you hoped s/he would be before you learned of the challenges she/ he would face. Does that makes sense? If not this segment, maybe something to consider down the road.

Dee Steinbach

Posted Feb 25, 2017 by Dee Steinbach

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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