- Selected Topics
- What is Deaf-Blindness
- Definitions of Deaf-Blindness
- Causes of Deaf-Blindness
- National Child Count & Demographics
- Communication Overview
- Early Communication
- Prelinguistic Communication
- Object Communication
- Symbolic Communication
- Sign Language
- Accessing the General Curriculum
- Auditory Training
- Calendar Systems
- Concept Development
- Daily Living Skills
- Environmental Considerations
- Harmonious Interactions
- Lilli Nielsen and Active Learning
- Orientation & Mobility
- Play & Recreation
- Social Interactions
- Tactile Strategies
- Universal Design for Learning
- van Dijk Approach
- Identification & Referral
- Early Intervention
- Assessment Overview
- Assessment Tools and Instruments
- Alternate Assessment
- Program Planning
- IEP Development
- IDEA (Individuals with Disabilities Education Act)
- Assistive Technology
- History of Deaf-Blind Education
- Self Determination
- Person Centered Planning
- Postsecondary Education
- Independent Living
- Customized Employment
- Sex Education
- Adult Services
- Intervener Services
- Support Service Provider
- Personnel Development & Training
- Interpreting for Deaf-Blind Individuals
- Interpreting for Deaf-Blind Individuals - Annotated Bibliography
- Training Resources
- Family Resources
- Personal Narratives - Family Stories
- Personal Narratives
- Art & Writing
- Cochlear Implants
- Functional Hearing
- Functional Vision
- Sensory Integration
- Central Auditory Processing Disorder/Auditory Neuropathy
- CHARGE Syndrome Webcasts and Presentations
- CHARGE Syndrome
- Congenital Rubella Syndrome (CRS)
- Cortical Visual Impairment
- Retinal Degenerative Disease
- Usher Syndrome
- Applications of Technology
- Research to Practice
- Topical Overviews
- Practice Perspectives
- Tools For TA
- Information Packets
- Deaf-Blind Perspectives
- Webinar Recordings
- NCDB eNews
- Archived Webinars
Personal Narratives Materials Bibliography
This is a partial list of materials on this topic available from the DB-LINK Catalog Database. If you have additional questions, please contact us via email: firstname.lastname@example.org
20/20 Barabara Walters : Bob & Michelle Smithdas -- Helen Keller National Center: 1998, On October 25, 1998 Barbara Walters interviewed Bob and Michelle Smithdas, a deaf-blind couple, for her television show 20/20.
Be With Me/ Khoo, Eric. -- Film Movement: 2005, 93 minutes.Be With Me is a feature film set in Singapore. It is described on the DVD jacket as "a tapestry of three stories woven around the themes of love, hope, tragedy and redemption. Although the main characters come from different backgrounds and lead different lives, they are bound by one common desire--to be with their loved one. Unbeknownst to them, these different souls will share the same stage in a play written by Fate. The protagonists in the movie are fictitious bar one--Theresa Chan, a courageous deaf and blind woman whose life story inspired the film." Theresa Chan, was once a student at Perkins School for the Blind.
BLACK/ Bhansali, Sanjay Leela. -- SLB Films: 2005, 124 minutes.This feature film from India begins with a dramatic retelling of "The Miracle Worker." It is set in India in modern times. A young girl named Michelle loses her hearing and vision as a toddler. Her parents hire a teacher named Debraj to live in their home and work with young Michelle when she is about 7. She eventually learns sign language and goes to college, accompanied by Debraj. The two are then separated for many years. During the latter part of the film when Michelle is an adult, Debraj returns, but is suffering from Alzheimer's disease and Michelle now becomes his teacher. Language: Hindi and English with subtitles.
Blind Rage : Letters to Helen Keller / Kleege, Georgina. -- Gallaudet University Press: 2006, 209.The author, Georgina Kleege, who is blind, is an Assistant Professor of English at the University of California, Berkeley. As a child, she developed a feeling of resentment towards Helen Keller because Keller was often presented to her as a model of how disabled people should be and her name "invoked as a reminder" of how grateful she, Georgina, should feel that she was not both deaf and blind. As an adult, she investigated Helen Keller's life and discovered a much more complex woman than she had imagined, but felt that there something missing from the accounts of her life. In this book she presents imaginary dialogues that she had with Keller through a series of letters. In the letters, she invites readers to "inhabit Keller's consciousness." Although based on facts, it is not a conventional biography or historical novel. Instead, the letters are written in a way that allows for exploration of shared experiences and sensibilities. Publisher's web site: http://gupress.gallaudet.edu
Creative Arts : A Unique Disability / Silver, Ruth. 2003, 4. THE DEAF-BLIND AMERICAN, vol. 42, #3, July-September 2003, pp. 45-48. This article is written by a deaf-blind woman who explains the difference between being deaf-blind and being blind only. She explains why deafblindness is not two separate disabilities put together, but rather a unique disability. Describes the differences socially, with balance, communication, recreation, common misunderstandings, and stress and fatigue.
Flying Blind and Deaf but Not Alone/ Bhattacharyya, Anindya. 2005, The New York Times, August, 30, 2005, 1-2, nytimes.com. Author talks about using technology while travelling including a laptop, a G.P.S. equipped Braille Note note taker, and a Screen Braille Communicator. Despite all the technology and a guide dog, he still needs human assistance. During one trip, his flight was delayed and rerouted. At one point he waved his arms to get help. A man came to assist him and through print on palm communication, let the author know that the flight was delayed and would land at a different NY airport. They sat together in first class and the "man" paid his cab fair back to the Helen Keller National Center. The author found out later that the "man" was the CEO of Rolex USA.
Frankly Speaking : An Interview With Steven Frank / Spiers, Elizabeth. 2007, THE DEAF-BLIND AMERICAN, Senior Adults Experiencing Hearing and Vision Loss, July-September 2007, Volume 46, Number 3, pp. 29-32. This article describes the life of Steven Frank of Rockville, MD who is Deaf-Blind. He is retired but has kept just as busy as when he was working full-time. Publisher's web site: http://aadb.org/
Home Sweet Home : A Deafblind Woman's Journey 2008, DBI REVIEW, July-December 2008, pp.4-7..The articles talks about how Lynn Todd's life changed significantly the day she departed Southest Regional Facility and went to live at Deafblind Ontario Services home in Kitchener. It shows how through communication and information provided by intervenors Lynn is becoming more receptive and able to participate in recreational, social and vocational activities.
In the Loop/ Fletcher, Ben. 2005, 3. Talking Sense, Autumn/Winter 2005, p. 26-28. The author who is deafblind and a software engineer at IBM Hursley, describes some of the amazing developments in technology that will have huge implications for deafblind people.
Inspirations From A Singing heart/ Grindel, Patricia. -- Proctor Publications, LLC: 2002, xlii, 146.This is a collection of peoms written by a deaf-blind woman about her personal experiences. She begins the book with a short biography.
Janet Sand's Story Coping With Deaf-Blindness Later in Life/ Spiers, Elizabeth. 2007, THE DEAF-BLIND AMERICAN, Senior Adults Experiencing Hearing and Vision Loss, July-September 2007, Volume 46, Number 3, pp. 20-22. This article is about Janet Sand, who has Usher 2 and lives in Silver Spring, MD. She is a board member of the American Association of the Deaf-Blind and former editor of The Deaf-Blind American. She lived all over the world as a child, spending much of her time in such places as Hawaii and Australia, although she spent much of her life in the Washington, DC area. Publisher's web site: http://aadb.org/
Jelica's Journey as a Personal and Professional Deaf-Blind Woman/ Nuccio, Jelica. -- Texas Deafblind Project: 2007, 2. 2007 Texas Symposium on DeafblindnessA presentation from the 2007 Texas Symposium on Deafblindness.
LESLEY'S STORY / McCrae, Heather. 2009, 2. TALKING SENSE, Vol 53, #2, Summer 2009, pp. 26-27. This article describes a 40 year old woman with congenital rubella syndrome and her life journey. It describes putting control of her life in her hands with support.
Monica Norman: Ohio Association of the Deaf-Blind/ Spiers, Elizabeth (Ed.) 2010, The DEAF-BLIND AMERICAN, vol. 49, #1, Summer 2010, pp. 17-20.This article is part of a special issue of the Deaf-Blind American focusing on state organizations for people who are deaf-blind. Monica Norman is a member of the Ohio Association of the Deaf-Blind (OADB). She describes how she has grown as a person who is deaf-blind through her involvement with OADB and its members. Monica has Usher syndrome and is currently majoring in web design at Stark State College of Technology in Ohio.
Patty Poems/ Grindel, Patricia M. -- Proctor Publications, LLC: 1998, 247.This is a collection of peoms written by a deaf-blind woman about her personal experiences.
Say It Loud - We're Deafblind and We're Proud/ Ball, Liz. 2005, 6. Talking Sense, Autumn/Winter 2005, p. 18-23. The author introduces us to a group of deafblind people who have something to say. The article invites a number of deafblind people to express what is on their minds.
SUDDENLY SLOW : Poems / Clark, John Lee. -- Handtype Press: 2008, 32. "Suddenly Slow: Poems," is a limited edition chapbook that showcases sixteen poems by the award-winning deaf-blind poet, John Lee Clark. Clark was born deaf and became progressively blind beginning in early adolescence. Through his poems, "Clark is making sense of a world that comes to him differently," says Morgan Grayce Willow, the author of two books of poetry. "All we need do is place our trust in the crook of the arm of this DeafBlind poet; he then leads us into a world where 'there is no answer in sight.' This is a world of broadened vision emerging from narrower sight, of heightened passion blossoming from experience at a slower pace. Each lyric along the journey into this poet’s 'kind of light' rewards our trust." Cost: $8.00. Publisher's web site: http://www.handtype.com