Demographics Materials Bibliography

by DB-LINK on May 1, 2011
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This is a partial list of materials on this topic available from the NCDB Catalog Database.  If you have additional questions, please contact us via email:

Updated 5/2011


20 Times More Elderly People With a Vision and Hearing Loss? --Mortensen, Ole E. DBI REVIEW, #38, July-December 2006, pp. 10-14. Mortensen, Ole E. (2006) The author is the Director of the Information Center for Acquired Deafblindness in Denmark. He reports on his work studying prevalence of deafblindness in the elderly population and brings forward some important findings.


Children with cochlear implants: a review of demographics and communication outcomes/ Belzner, Kate A.; Seal, Brenda C. -- Gallaudet University Press, AMERICAN ANNALS OF DEAF, vol. 154, #3, 2009, pp.311-333. (2009) Children with severe to profound hearing loss in the United States are diverse in their racial-ethnic backgrounds, comorbid disabilities, socioeconomic levels, and communication modalities. This article addresses the demographic variables and communication outcomes of children with cochlear implants by means of a review of longitudinal studies published from 2000 through 2007. Information gathered from these reports reflects several trends over the years. Chi-square testing, however, revealed that tow large samples chosen from the review failed to conform to an expected population profile for demographic diversity. This literature review and synthesis provides a body of evidence that should be useful for cochlear implant educators, clinicians, and researchers in determining the relevance of previous outcomes to individuals and groups who differ from those reported, and in devising suggestions for increased efforts to represent children of diverse backgrounds in investigations of implant outcomes.


Combined Sensory Impairment (Deaf-Blindness) in Five Percent of Adults with Intellectual Disabilities/Meuwese-Jongejeugd, A.; van Splunder, Jacques; Vink, Marianne; Stilma, Jan Sietse; van Zanten, Bert; Verschuure, Hans; Bernsen, Roos; Evenhuis, Heleen, AMERICAN JOURNAL OF MENTAL RETARDATION, vol. 113, #4, July 2008, pp. 254-262. (2008) The purpose of this cross-sectional study with 1,598 adult clients who had intellectual disabilities was to obtain valid prevalences of sensory impairments and to identify associations. The diagnoses were made through ophthalmologic and audiometric assessments, applying WHO/IASSID definitions. The prevalence of deafblindness in this population was 5.0% (2.9% for those less than 50 years and 11.0% for those age 50 older). Apart from being 50 years of age and over, risk factors for deafblindness within the population were more severe intellectual disability and Down Syndrome. Results show that the risk of combined sensory impairment in this population is considerably increased compared with the general population. However, the complete diagnosis had been identified in only 12%.


Concurrent Visual and Hearing Impairment and Risk of Mortality --Lam, Byron L.; Lee, David J.; Gomex-Marin, Orlanado; Zheng, Diane; Caban, Alberto J. ARCHIVES OF OPHTHALMOLOGY, vol. 124, January 2006, pp. 95-101. (2006) This study obtained visual and hearing impairment data and survival status data for 116,796 adults aged 18 years and older. A total of 3,620 reported visual impairment only, 12,330 reported hearing impairment only, and 1,461 reported concurrent visual and hearing impairment. Mortality linkage identified 8,949 deaths with an average follow-up of 7.0 years. After controlling for survey design, age, marital status, educational level, self-rated health, and a number of nonocular and nonauditory conditions, white participants and "other-race" participants, but not African American participants, reporting concurrent visual and hearing impairment had significantly increased risk of mortality in comparison with their counterparts reporting no impairment. Risk of mortality was generally greater for participants reporting concurrent impairment as compared with that for participants reporting either visual impairment alone or hearing impairment alone. Conclusions: In the United States, white persons and those of other races, but not African American persons, reporting concurrent visual and hearing impairment have an increased risk of mortality. Reported concurrent impairment is an independent predictor of mortality among white persons and those of other races for both men and women. Available on the web:


Dual Sensory Loss and Its Impact on Everyday Competence --Brennan, Mark; Horowitz, Amy; Su, Ya-ping. THE GERONTOLOGIST, vol. 45, #3, pp.337-346. (2005) Based on data from the Longitudinal Study on Aging, composed of 5,151 individuals aged 70 and older in 1984, this study assessed the probability of difficulty with specific personal activities of daily living (ADLs) and instrumental activities of daily living (IADLs) associated with sensory impairment and cognitive status in elderly people. One fifth of older adults reported dual sensory impairment which was associated with greater difficulty with IADLs (e.g., preparing meals, shopping, and using the telephone) than personal activities of daily living. Cognitive status was a significant predictor of both ADL and IADL difficulties. Findings highlight the importance of sensory resources for everyday competence and suggest the need for effective vision and hearing rehabilitation to assist older adults in improving or maintaining their functional independence.


First Look at Children and Youths Who Are Deaf-Blind in the Kingdom of Thailand --Sukontharungsee, Saowaruk; Bourquin, Eugene; Poonpit, Mor. JOURNAL OF VISUAL IMPAIRMENT & BLINDNESS (JVIB), vol.100, #9, September 2006, pp.557-562. (2006) The study presented in this paper represents the first organized attempt to examine the population of individuals who are deaf-blind in Thailand. This study began as a master's thesis in a university rehabilitation program; in 2004, the results were concisely presented at a conference in Asia (Sukontharungsee, 2005). The research activities were overseen by a committee of six professors, emeritus professors, and advisers. The critical role of defining and beginning to understand the prevalence and needs of people with disabilities, especially those who are deaf-blind, is vital to the establishment of services in Thailand. By reporting on the census and surveys conducted with individuals who are deaf-blind and their significant relatives, the authors hope that a nascent picture will emerge to assist in planning for appropriate programs and services in Thailand, which appears to be poised to expand and improve services for people with disabilities. Problems that were highlighted by the research include the lack of interpreters and other rehabilitation personnel, such as social workers, counselors, and others who are knowledgeable about deaf-blindness; more positive societal attitudes; and increased training and availability of teachers and educational programs. Also notable was the lack of the perceived need for advanced technology. This document is available on the web at:


Future in Our Hands - An Update of the 1994 Report: Investigation into the Needs of and Services for People in Australia who are Deafblind --Pram, Meredith. 14th DbI World Conference on Deafblindness Conference Proceedings, September 25-30, 2007, Perth, Australia. (2007) This is text of a workshop presentation given at the 14th DbI World Conference on Deaf-Blindness. This presentation summarizes the findings of a research project undertaken by the Australian Deafblind Council in 2005 which updated the findings of the Investigation into the Needs of and Services for People in Australia who are Deafblind (Ward, 1994).


An Invisible, Silent World: The Situation of Deafblind People in Bangladesh --Khan, A.H.M. Noman; Chowdhury, Sadaf Noori. DBI REVIEW, #33, Janurary-June 2006, pp. 4-8. (2006) The DBI Asia conference in January 2006 was an outstanding success. At its heart was a report commissioned by the Host organization, NFOWD, and undertaken by its General Secretary, A.H.M. Noman Kahn with study consultant, Sadaf Noori Chowdbury. Along with the report, entitled "An Invisible Silent World", a moving and dignified short film was made to illustrate the lives of the 20 deafblind people and their families who were its focus. The findings from this insightful report are summarized in this article.


National Deaf-Blind Child Count: 1998-2005 in Review/Killoran, John. -- National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind: (2007) This report details characteristics of the population of children who are deaf-blind in the United States from the years 1998 to 2005. It includes the total number of children reported annually to state/multi-state deaf-blind projects, race/ethnicity, classification of visual and hearing impairments, number of children with additional impairments or conditions (physical, cognitive, behavioral, health), etiology of deaf-blindness, early intervention and educational settings, and living settings. Publisher's web site: This document is available on the web at:


Prevalence and Characteristics of Dual Sensory Impairment (Hearing and Vision) in a Veteran Population --Smith, Sherri L.; Bennett, Loren W.; Wilson, Richard H. JOURNAL OF REHABILITATION RESEARCH & DEVELOPMENT, vol. 45, #4, July 2008, 597-610. (2008) With the increasing aging population, the number of veterans presenting with dual sensory impairment (DSI) (vision and hearing impairments) will increase. This study determined the prevalence and clinical characteristics of DSI in a veteran population receiving healthcare from the Department of Veterans Affairs (VA). A retrospective review was conducted on 400 charts randomly selected from a database of 1,472 unique veterans enrolled in the audiology and optometry outpatient clinics during a 1-year period. Depending on definition criteria, hearing impairment prevalence was 41.6% to 74.6%, vision impairment/blindness prevalence was 7.4%, and DSI prevalence was 5.0% to 7.4%. The vision impairment/blindness prevalence governed the DSI prevalence. By age, DSI prevalence ranged from 0% (among veterans <65 years) to >20% (among veterans 85+ years). The complexities encountered in defining DSI are discussed and suggestions are made for determining standardized definitions. More research is needed to determine the unique characteristics of individuals with DSI and their impact on VA resources. Available on the web:


Rehabilitating the Deaf-Blind Client --Schein, Jerome D. JADARA, Vol. 39, Nos. 2 & 3, 2006. (2006) This paper describes the need for services for the deaf-blind population which is destined to grow larger as the general population ages. The New Jersey Plan is singled out as an example of what should and can be done. This article is a reprint from an earlier article published in 1986.


Special Education, Related Services, and Supports for Children Who Are Deaf-Blind/Smith, Anne; Gense, D. Jay, AER JOURNAL: RESEARCH AND PRACTICE IN VISUAL IMPAIRMENT AND BLINDNESS, Summer 2010, vol. 3, #3, pp. 115-122. (2010) This article provides an overview of the history and evolution of service delivery for children who are deaf-blind, demographic data describing the population of children who are deaf-blind, and highlights considerations of future directions for the design and applications of policy, practice, and research.


Study of Deaf-Blind Demographics and Services in Canada Extracts from the Study with Special Reference to the Demographics --Monroe, Stan; Watters, Colleen; Owen, Michelle. 14th DbI World Conference on Deafblindness Conference Proceedings, September 25-30, 2007, Perth, Australia. (2007) This is the text of a workshop presentation given at the 14th DbI World Conference on Deaf-Blindness. The paper describes a study undertaken to produce a report containing (1) demographic information about persons in Canada with acquired and congenital deafblindness; (2) discussion about the service needs of persons who are Deaf-Blind and their parents/advocates; (3) an overview of the personal stories of the barriers and successes experienced by individuals who are Deaf-Blind and their parent/advocates; (4) an outline of existing services to meet the needs of persons who are Deaf-Blind and their parents/advocates and (5) directions for future research.

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