Adult Services Bibliography

by National Center on Deaf-Blindness on May 1, 2013
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This is a partial list of materials on this topic available from the NCDB Catalog Database.  If you have additional questions, please contact us via email:

Updated 6/2013


Aging and Vision Loss: A Handbook For Families --Orr, Alberta; Rogers, Pricilla. New York: AFB Press. (2006) This handbook is organized in a narrative format to follow the major stages of adjustment to vision loss. It contains information on coping with vision loss and the stages of adjustment, basic facts about vision loss, adaptations for daily living, support systems and services, and recreation and leisure activities. Chapter 8 offers information about vision loss along with other health conditions or disabilities such as hearing impairment or deaf-blindness. A section on "frequently asked questions" is included as well a list of resources.


Challenging Behaviour in Adults --Sense. London: Sense. (2008) This factsheet explains how adults born deaf-blind may try to communicate in ways that distress others, or which may endanger themselves or others. It also briefly describes how Sense works with individuals who are deaf-blind to help them interact with the world around them and to improve their quality of life.


Deaf-Blind Reality: Living the Life --Stoffel, Scott M. (Ed.) Washington, DC: Gallaudet University Press. (2012) From the book jacket: "explores what life is really like for persons with a combination of vision and hearing loss, and in a few cases, other disabilities as well." Includes extensive interviews with 12 deaf-blind individuals, including the author, who live in different areas of the world. Topics include family reactions to hearing and vision loss, school experiences, transition-to-adulthood experiences, relationships, careers, communication, and coping with a variety of challenges.


Experiences from People With Deafblindness: Nordic Project: Theory and Methods --Olesen, Birgitte Ravn; Jansbol, Kirsten. Information Center for Acquired Deafblindness. (2005) This booklet describes a five year Nordic project focusing on the personal experiences of persons with acquired deafblindness. The project objectives are explained and the theoretical and methodological reflections carried out both before and during the execution of the project are included. This is a collection of the most important points from the five booklets that cover the main issues in a deafblind person’s life. The aim was to let a group of deafblind persons talk about the consequences the progressive hearing and sight loss has on living the life that they wish to live. The five year project was designed to gather insight on the possibilities of creating and maintaining realtionships and of participating in society and to build up knowledge that can guide professionals.


Fanmanflavah's Life is Good: An Interview with Jarrett Heartmann and his Mom on Living on his Own California Deaf-Blind Services. RESOURCES, Fall 2007, vol.13, #1, pp.4-5. (2007) This newsletter contains the interview of a mother and her adult son who has CHARGE and limited vision and is living on his own. Available on the web:


A Feel for the Client --Sale, Anabel Unity. COMMUNITY CARE; April 26, 2007 Issue 1670, pp. 42-43. (2007) The article focuses on social services being offered by the team of deafblind charity Sense branch in Epsom, which consists of Clair Waterman, Sam Bissett and Alison Asufu-Adjaye in Surrey, England. It states that the team visits about 30 clients a month to assess and support deafblind people. The team also trains health and social care practitioners and users alike in alternative forms of communication and advises residential care home providers on how to work with clients.


Health, Well-Being and Congenital Rubella Syndrome : A Sense and Sense Scotland Practice Sharing Event --Sense. London: Sense. (2009) This is a report of a seminar on congenital rubella syndrome (CRS) that took place in Crewe, England, March 6-7, 2009. The seminar was attended by 50 delegates, most practitioners, who discussed aging with congenital rubella syndrome and what practitioners can do to provide better support to people with CRS. Three overarching themes developed during the conference: (1) the importance of understanding the initial and ongoing medical effects of CRS and their implications; (2) the importance of communication between professionals and individuals with CRS; and (3) the importance of collaboration among professionals. The report follows the order of the presentations and workshops conducted over the two days of the seminar. Specific topics include the following: an overview of health and CRS, including a summary of surveys conducted in a wide variety of countries; specific health concerns including endocrine problems (e.g., thyroid problems, diabetes), types of vision and hearing losses, and heart conditions; healthy living, including strategies to support mental and emotional health; and the effects of CRS on the brain and behavior. Two case studies of adults with CRS are also included.


Interview with Maria Clauding --Moller, Bettina U. NEWS - The Information Center for Acquired Deafblindness, NO. 1, Spring 2007, pp. 15-16. (2007)This article describes a pilot program developed by the Information Center in 2006 in two local authorities on tracing combined visual and hearing disability in people aged over 80 living in their own homes. Preventive care staff at the two local authorities were equipped with a question guide which focussed on both vision and hearing . Maria Clauding is the deafblind consultant who covers both districts and the preventative care staff referred to for assistance.


Invisible: My Journey Through Vision and Hearing Loss --Silver, Ruth. Bloomington, IN: iUniversities. (2012) The memoir of a woman who is deaf-blind. She shares her life experiences and her struggles to accept blindness, and later, hearing loss. 


Janet Sand's Story Coping With Deaf-Blindness Later in Life --Spiers, Elizabeth. THE DEAF-BLIND AMERICAN, Senior Adults Experiencing Hearing and Vision Loss, July-September 2007, Volume 46, Number 3, pp. 20-22. (2007) This article is about Janet Sand, who has Usher 2 and lives in Silver Spring, MD. She is a board member of the American Association of the Deaf-Blind and former editor of The Deaf-Blind American. She lived all over the world as a child, spending much of her time in such places as Hawaii and Australia, although she spent much of her life in the Washington, DC area. Publisher's web site:


Life Adjustment and Combined Visual and Hearing Disbaility/Deafblindness: An Internal Process Over Time --Gullacksen, Ann-Christine; Goransson, Lena; Ronnblom, Gunilla Henningsen; Koppen, Anny; Jorgensen, Anette Rud. Nordic Centre for Welfare and Social Issues. (November 2011) This document contains the results of a study to gain increased knowledge of the life adjustment process related to acquired deafblindness. The process included focus groups and formation of a reference group.


A National Transition Follow-Up Study of Youth with Deaf-Blindness : Revisited -- Petroff, Jerry G. AER JOURNAL: RESEARCH AND PRACTICE IN VISUAL IMPAIRMENT AND BLINDNESS, vol. 3, #4, Fall 2010, pp. 132-138. (2010) This article reports the findings of a study on post-school outcomes of youth who are deaf-blind. It used the same survey methods as a 1999 study that asked parents about the transition and post-secondary experiences of their children with deaf-blindness. Both studies gathered descriptive information on the characteristics, demographics, and experiences of youth with deaf-blindness and the level of parental satisfaction in their child's secondary education and post-school life. The current survey was completed by 109 respondents. Findings are reported for past school experiences (educational setting, use of dedicated interveners or para- educators, transition planning) and post-school life (employment, living situation, community participation). The article concludes with recommendations for educational and adult service systems and a discussion of policy issues.


Observing the Behaviour and Interactions of Adults with Congenital Deafblindness living in Community Residences --Prain, Meredith; McVilly, Keith; Ramcharan, Paul; Currie, Sally; Reece, John. JOURNAL OF INTELLECTUAL AND DEVELOPMENTAL DISABILITY, vol 35, #2, June 2010, pp. 82-91. (2010) This study examined the nature of interactions between adults with congenital deafblindness (CDB) and the staff who provide support, and investigated the reliability of an observation coding system, originally designed for observing adults with severe intellectual disability. The behaviours of 9 adults with CDB, including their interactions with support staff from 2 community residences, were recorded and subsequently coded by 2 observers. The adults with CDB were predominantly observed to be disengaged, with few observations of engagement according to the coding schedule's definition of engagement. Interactions between the residents and support staff were rare.


Perspectives on the Transition to Adulthood: An Interview with Cathy Kircher, Regional Representative with Helen Keller National Center California Deaf-Blind Services. RESOURCES, vol.13, #1, Fall 2007, pp.1-3. (2007) The news letters contains the interview with Cathy Kircher of Helen Keller Center on the transition to adulthood. Gives recommendations and talks about service providers Available on the web:


Psychosocial Adaptations to Dual Sensory Loss in Middle and Late Adulthood TRENDS IN AMPLIFICATION, December 2007, Vol. 11, No. 4, pp. 281-300. (2007) Concurrent losses of hearing and vision function, or dual sensory loss, affect a large number of individuals of all ages and particularly older adults. Dual sensory loss may present at any age as a result of genetic defect, accident, injury, disease, or environmental insult; however, most persons develop this condition as a result of age-related disease processes that rarely result in total deafness or blindness. This condition has wide-ranging implications for physical and psychological functioning and quality of life. In this article, we review the prevalence and causes of dual impairment and its effects on functioning for both individuals affected and their families. We examine psychosocial coping and adaptation to this condition using biopsychosocial—spiritual and ecological models and discuss various strategies for coping and adaptation. The impact of larger societal forces on psychosocial adaptation is presented, followed by recommendations for how rehabilitation and other professionals can meet the challenge of dual sensory loss that awaits us with the aging of the population.


Rehabilitating the Deaf-Blind Client --Schein, Jerome D. JADARA, Vol. 39, Nos. 2& 3, 2006. (2006) This paper describes the need for services for the deaf-blind population which is destined to grow larger as the general population ages. The New Jersey Plan is singled out as an example of what should and can be done. This article is a reprint from an earlier article published in 1986.


Sensory and Demographic Characteristics of Deafblindness Rehabilitation Clients in Montreal, Canada --Wittich, Walter; Watanabe, Donald H.; Gagne, Jean-Pierre. THE JOURNAL OF THE COLLEGE OF OPTOMETRISTS. (2012) Purpose: Demographic changes are increasing the number of older adults with combined age-related vision and hearing loss, while medical advances increase the survival probability of children with congenital dual (or multiple) impairments due to pre-maturity or rare hereditary diseases. Rehabilitation services for these populations are highly in demand since traditional uni-sensory rehabilitation approaches using the other sense to compensate are not always utilizable. Very little is currently known about the client population characteristics with dual sensory impairment. The present study provides information about demographic and sensory variables of persons in the Montreal region that were receiving rehabilitation for dual impairment in December 2010. This information can inform researchers, clinicians, educators, as well as administrators about potential research and service delivery priorities.

Conclusion: The age distribution in this sample of persons with dual sensory impairment indicates that service delivery planning will need to strongly consider the growing presence of older adults as the baby-boomers approach retirement age. The distribution of their visual and auditory limits indicates that the large majority of this client group has residual vision and hearing that can be maximized in the rehabilitation process in order to restore functional abilities and social participation. Future research in this area should identify the specific priorities in both rehabilitation and research in individuals affected with combined vision and hearing loss. 


Services for Deafblind adults scattered: Self-reporting limits count accuracy -- Farber, Karen. One in Five Newsletter, Spring 2004, Vol.3, Issue 2, pp 8. (2004) This short article discusses the importance of having adults in Maine who are deafblind admit they have a disability and then to advocate for services to meet their needs. Due to the rural nature of the state of Maine transportation is crucial for the deafblind person. Patty Sarchi, a deaflbind advocate believes that if people don't own up to what they want and need, they won't get the services. Sarchi also believes that the process of denial is not in their (deafblind people's) best interest.


Twelve Lessons from the Development and Operation of an Australian Accommodation Support System for Deafblind Adults --Wetton, Trish; Steer, Mike. DbI Review, Number 41, January - June 2008, pp. 12-16. (2008) This article describes the principles that have the guided the success of an agency developing and managing a reasonably large accommodation and support system for deafblind adults in Australia.


Vision and hearing loss in older adults: "Double Trouble" --Berry, Paige; Mascia, John; Steinman, Bernard A. Care Management Journals, 2004 Spring;5(1):35- 40. (2004) Recent studies indicate that by age seventy, 21% of the people living in the United States have both vision and hearing loss. Dual sensory loss in the elderly has a significant effect on an individual's ability to socialize, communicate with others, and live independently. This article addresses the issues faced by older individuals who are hard of hearing and blind or visually impaired. Common causes and behavioral signs of hearing and vision loss are discussed. An emphasis is placed on the functional implications of the dual sensory impairment and possible accommodations and communication strategies are outlined.  

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