Causes of Deaf-Blindness Bibliography

by National Consortium on Deaf-Blindness on Apr 1, 2009
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This is a partial list of materials on this topic available from the DB-LINK Catalog Database.  If you have additional questions, please contact us via email:

Updated 4/2009


Ageing Process and the Late Manifestation of Conditions Related to the Cause of Congenitally Deafblind Adults in Denmark --Laustrup, Birthe. DBI REVIEW, #33, January-June 2004, pp. 4-7. (2004) The Information Centre on Congenital Deafblindness in Denmark conducted a survey that began collecting information in 1999. The purpose of the survey was to collect information about the aging process and late manifestations of the causes of deafblindness. Participants included everyone, age 18 and over, diagnosed with congenital deafblindness in Denmark. The survey compared individuals diagnosed with congenital rubella syndrome, with individual with other etiologies. A summary of the survey findings are presented in this article.


Complete Directory for Pediatric Disorders Millerton, NY: Grey House Publishing, Inc. (2007) Section I includes information about more than 260 disorders, diseases, or conditions. Each chapter begins with an extensive description, written in understandable language, that includes the following: disorder name and synonyms, physical findings, cause, standard treatment, primary symptoms, related disorders, and body system affected. Disorder-specific resources (e.g., associations, government agencies, support groups) follow each description. Section II lists general resources. Section III is comprised of 14 detailed descriptions of body systems or medical categories. It is intended to enable readers to broaden their understanding of how disorders relate to the body and ranges from the structure and function of human cells and tissues to child growth and development. Section IV is a glossary. Section V provides guidelines for obtaining additional information and resources.


Deaf-blindness and combined impairments of hearing and vision --Rosenhall, Ulf. Audiological Medicine. 2006; 4; 109-116. (2006) The combination of sensory dysfunction of both hearing and vision causes extremely pronounced functional deficit and handicap. Two distinct patient groups are discussed; those who are congenitally impaired often associated with specific syndromes and; elderly individuals with both age-related hearing loss and visual impairments. This article offers an overview of syndromes associated with deaf-blindness. It also briefly discusses the needs of elders with acquired hearing and vision loss.


Facilitating Successful Outcomes for Individuals Who Are Deaf-Blind : Accommodations, Strategies and Resources --Walt, Dorothy; Kirscher, Cathy; Brennan, Michael; Reiman, John. Monmouth, OR: Western Oregon University. (2001) Unedited transcript of a full day workshop. General overview of the causes of deaf-blindness and implications, environmental accommodations, impact upon mental health and social adjustment and resources available. Generally adult focused. Includes questions and answers. Power Point presentations on the following subjects are available at the website: Etiologies and Implications for Rehabilitation, Communication Issues, Psychosocial Issues of Deafblindness, Low Vision Conditions & Some Low-Tech Solutions, and Resources on Deafblindness.


Issues in the Evaluation of Infants and Young Children Who Are Suspected of or Who Are Deaf-Blind --Holte, Lenore; Prickett, Jeanne Glidden; Van Dyke, Don C.; Olson, Richard J.; Lubrica, Pena; Knutson, Claudia L.; Knutson, John F.; Brennan, Susan. INFANTS AND YOUNG CHILDREN, vol. 19, #3, pp. 213-227. (2006) This article provides an overview of the following topics: the effects of deaf-blindness on development, causes of deaf-blindness, and early screening and assessment strategies. It addresses hearing and vision evaluation, developmental and cognitive assessment, educational and communication assessment, and genetic evaluation.


The National Deaf-Blind Child Count : 1998-2005 in Review --Killoran, John. Monmouth, OR: National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind. (2007) This report details characteristics of the population of children who are deaf-blind in the United States from the years 1998 to 2005. It includes the total number of children reported annually to state/multi-state deaf-blind projects, race/ethnicity, classification of visual and hearing impairments, number of children with additional impairments or conditions (physical, cognitive, behavioral, health), etiology of deaf-blindness, early intervention and educational settings, and living settings. Available on the web: Publisher's web site:


New Concepts in Deafblindness --Best, Tony. Brantford, Ontario: Canadian Deafblind and Rubella Association. 13th DbI World Conference on Deafblindness Conference Proceedings, August 5-10, 2003, Mississauga, Ontario, Canada. (2003) This is the text of a workshop presentation given at the 13th DbI World Conference on Deaf-Blindness. Because some very complex congenital and medical conditions cause deaf-blindness in children, Tony Best, from the UK, argues that the neurological involvement of the vast majority of children under the age of 10 makes deaf-blindness a medical condition as much as a sensory disability and proposes a new way of looking at deaf-blindness that incorporates an understanding of the medical aspects of deaf-blindness (particularly as they relate to neurology and genetics). He describes how a medical model would enhance two current ways of viewing deaf-blindness, the social model (emphasizes providing learning and teaching environments that eliminate barriers to access) and the psycho-educational model (uses a functional definition based on the restrictions created by combined vision and hearing impairments in accessing information, communication, and mobility) and discusses the implications that a new perspective would have for research, training, and collaboration with medical professionals.


New Deaf-Blind Populations : Etiological Factors and Implications for the Future --Collins, Michael; Majors, Martha; Riggio, Marianne. Orebro, Sweden: International Association for the Education of the Deaf-Blind. Proceedings of the 10th IAEDB International Conference: Quality of life: Lifelong enrichment (p.121) (1991) A very informative one page description about changes in the etiology of deaf-blindness over time and the implications of this for deaf-blind education and teacher training. Mentions the increasing incidence of children with severe multiple impairments and health problems in the Perkins School for the Blind deaf-blind program and provides some results from a study at Perkins of the etiologies of 255 students served within 4 New England states. 

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