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2017 National Webinar: Educational Considerations for Students with Usher Syndrome

by NCDB on Oct 11, 2017
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The Usher Syndrome Coalition estimates that there are more than 7,000 children with Usher syndrome in the United States. Yet in 2015, the state deaf-blind projects reported that roughly 300 children with Usher syndrome were served. Where are these students being educated? And are their educational needs being adequately met?

A young man wearing glasses and a hearing aid works on a computer with a magnified screen. Three logos: National Center on Deaf-Blindness, The National Family Association for Deaf-Blind, and Usher Syndrome Coalition.

The contents of this webinar has been presented in two parts. In Part 1 the presenters give an overview of Usher syndrome, knowing what that means for your child,  and first steps in creating an educational program. In Part 2 they go into a deeper discussion about individualized education plans (IEPs), accommodations, and modifications. They talk about specially designed instruction, who should be on your child educational team, the importance of making smooth transitions, and adult services. Throughout the two part series Carly Fredericks and Patti McGowan, both parents of children with Usher syndrome and Nancy O’Donnell, Director of the USH Trust Registry, shared personal stories and informative resources. 


  • Carly Fredericks (New Jersey Consortium on Deafblindness / NFADB / Founder of Ava’s Voice)
  • Patti McGowan (Pennsylvania Deaf-Blind Project / NFADB)
  • Nancy O’Donnell (Usher Syndrome Coalition)

Recorded Webinar

Webinar recording: Part 1 - Educational Considerations for Students with Usher Syndrome
Webinar recording: Part 2 - Educational Considerations for Students with Usher Syndrome

Closed Captioning

Associated Files

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
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