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2017 National Webinar: Educational Considerations for Students with Usher Syndrome

by on Oct 11, 2017
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Webinar Description

The Usher Syndrome Coalition estimates that there are more than 7,000 children with Usher syndrome in the United States. Yet in 2015, the state deaf-blind projects reported that roughly 300 children with Usher syndrome were served. Where are these students being educated? And are their educational needs being adequately met?

A young man wearing glasses and a hearing aid works on a computer with a magnified screen. Three logos: National Center on Deaf-Blindness, The National Family Association for Deaf-Blind, and Usher Syndrome Coalition.

Parents, join us for an open, genuine, and powerful 90-minute presentation and discussion focusing on these children. Family Engagement Coordinators Carly Fredericks and Patti McGowan, both parents of children with Usher syndrome, along with Nancy O’Donnell, Director of the USH Trust Registry, will share personal stories and informative resources. Open discussion will follow.


  • Carly Fredericks (New Jersey Consortium on Deafblindness / NFADB / Founder of Ava’s Voice)
  • Patti McGowan (Pennsylvania Deaf-Blind Project / NFADB)
  • Nancy O’Donnell (Usher Syndrome Coalition)

Recorded Webinar

Webinar recording for 10/11/17

Closed Captioning

Associated Files

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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