: NY State Parent Liaison/ CHARGE Syndrome Foundation
Stewart Manor , NY 11530
My name is Mary McDonald and I am the NY State Parent Liaison for the CHARGE Syndrome Foundation. I live in Stewart Manor, NY with my husband and our two children Sarah and Patrick. Our son Patrick (now 13 years old) was born with CHARGE Syndrome. Patrick has hearing, vision and medical issues related to CHARGE.
I feel connecting with other parents, families and professionals is so important. Collaborating, sharing information, seeking and giving support are essential due to the multitude of challenges that come with this rare syndrome.