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July 2017 EI&R News!

Early Identification and Referral

July 2017 EI&R News!

Early Identification and Referral

This page was last updated on Jul 3, 2017 at 8:37 am

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Happy July Everyone! 

Here’s an update on what’s happened with the EI&R Initiative recently as well as some cool resources to check out.

Updates

In response to results from the National Family Needs Survey and the State Deaf-Blind Project Survey, a group of Family Engagement Coordinators (FECs) who work for state deaf-blind projects began meeting in early May to discuss the following:

1)  Clarity of the role of the FEC in serving families of infants and toddlers with combined vision and hearing loss. 

2)  How to best share information (e.g., information packets, links to websites) and provide support to families.

3)  The need for stories about how child and family experiences (e.g., type of services received, medical care) during the first few years of life impact a child’s development and family dynamics.

In just two months, the group has met three times and made immense progress, including:

  • Creation of a sample letter that state deaf-blind projects can adapt and use to introduce families to their projects and other key state and national resources.
  • Review of existing materials that state projects currently disseminate to families of infants and toddlers, with the intent of creating a packet of the most useful and important information for every family of children in this age group to know.
  • Collection of several family stories about the impact of early life experiences of a child who is deaf-blind on the family. 

If that’s not enough, they’ve also decided to hold a national webinar called “A Parent’s Story” to help Part C Providers and families hear firsthand from a parent about navigating this critical and often stressful time of life. The webinar will be held twice, once in English and once in Spanish on:

During the webinar, Myrna Medina, the FEC from California Deafblind Services, will share her journey and tips for parents and providers. Flyers advertising the training will be available in the next few weeks, so be on the lookout for them in another  post.

A HUGE thanks is due to this talented group of women who are devoting so much time and effort to ensure that families feel connected and supported.  Thanks FECs!!!

Now for some cool resources . . .

1)  On Wednesday, June 28, Rose Moehring (SD) and Sherri Nelson (ND)presented a webinar about the use of OHOA Modules to support Part C providers. If you missed it, it’s a “must see.” The webinar is useful for state deaf-blind project staff, Part C providers, and families. Click here for a link to a recording.

2)  Want to learn more about the impact of deaf-blindness on early development? The Sooner the Better: A Framework for Training Early Intervention Practitioners on Deaf-Blindness is loaded with content to help train and support quality early intervention. In August, a group of state deaf-blind projects will meet to talk about the framework and ways in which it can be tailored to meet unique needs in their states.  As they share stories and make progress, we plan to highlight their successes here in future forum posts.

I hope the summer is filled with lots of fun and excitement for everyone!  If you have questions, don’t hesitate to contact me (megan.cote@hknc.org) or Mark Schalock (schalom@wou.edu).




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