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Jackie Kenley, a former Family Specialist for California Deaf-Blind Services, shares her experience of daughter Laura's transition to adult living.
Laura Kenley is now an adult even though she only weighs 92 lbs and is several inches short of 5 feet. Laura was diagnosed with CHARGE syndrome very early and has retinal colobomas which cause her to have only limited vision in her right eye. She is profoundly deaf since birth and has had two open heart surgeries to repair Tetrology of Fallot and Mitral Valve problems. Laura has vesitibular problems and uses limited sign language for communication. [Read More]