Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.See previous Families Matter Stories
Meet Paul Uribe
Paul, age six, lives in California with his parents. He has combined vision and hearing loss due to CHARGE syndrome. His parents have made it a priority to connect with other families through the CHARGE Syndrome Foundation, their state deaf-blind project, and social media.
Connect and Learn
Family Engagement InitiativeJoin us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.
Follow this link to the National Family Association for Deaf-Blind (NFADB) website to find collections of stories from families of individuals who are deaf-blind.
Family Resources Flyer - Find information for families available from NCDB and other national organizations.
Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families.
Family Fun Facts - Join us on Facebook for our weekly post (every Friday) highlighting a family.
Please select your state or
Log In to see Useful Contacts.
Other Useful Contacts
Recursos En Español para Las FamiliasRecursos en Español para Las Familias
Happy October Everyone!
Happy September Everyone!
I am excited to share the following with you . . .
Founded in 1993, the CHARGE Syndrome Foundation...
Happy August Everyone!
NCDB is thrilled to announce the release of our newest Families Matter story called “Meet Paul Uribe.” ...
Every Friday NCDB posts a Family Fun Fact on Facebook and Twitter. These stories, photos, and videos celebrate families...
Find the materials here: