Families Matter

Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

See previous Families Matter Stories

Meet Paul Uribe

Paul smiles

Paul, age six, lives in California with his parents. He has combined vision and hearing loss due to CHARGE syndrome. His parents have made it a priority to connect with other families through the CHARGE Syndrome Foundation, their state deaf-blind project, and social media.

Connect and Learn

Mom holding son  Family Engagement Initiative

Join us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.


Family Stories Icon  Family Stories

Follow this link to the National Family Association for Deaf-Blind (NFADB) website to find collections of stories from families of individuals who are deaf-blind.

Family Resources Icon  Family Resources

NCDB Family Brochure  - Quick overview of NCDB and children who are deaf-blind. (Español)

Family Resources Flyer - Find information for families available from NCDB and other national organizations.

Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families. 

Family Fun Facts - Join us on Facebook for our weekly post (every Friday) highlighting a family.

Family Resources

Please select your state or
Log In to see Useful Contacts.

Other Useful Contacts

  1. 1 State Project Family Engagement Coordinators
  2. 2State Deaf-Blind Projects
  3. 3 National Family Association for Deaf-Blind
  4. 4 Helen Keller National Center Regional Reps
  5. 5 CHARGE Syndrome Foundation
  6. 6CHARGE State Parent Liaisons
  7. 7Usher Syndrome Coalition
  8. 8State Parent Centers
  9. 9iCanConnect

Recursos En Español para Las Familias

Recursos en Español para Las Familias

Cumpliendo Sueños: Cómo Preparar a los Jóvenes con Sordoceguera para una Vida Independiente

2016 - 2017 Seminarios de español para Familias

DB 101 en Español

2015 Transiciones en la Vida del Estudiante con Sordo-Ceguera

2015 Identificación e Intervención Temprana

Primeras Interacciones con Ñinos Sordo-Ciegos

Perspectiva General sobre la Sordo-Ceguera

Ñinos Sordociegos

Otros Recursos

Family Discussions

December 2018 News!


Happy December!

Interested in making homemade holiday gifts with your child? Or do you need activities to do at home during...



NCDB is excited that the Literacy Initiative has been expanded and will now be referred to as the Assessment, Planning,...

November 2018 News!


Happy November Everyone!

With the cool weather on its way, we will soon be spending more time inside trying to keep...

October 2018 News!


Happy October Everyone!

Do you live in or near New York City?  Do you have friends who do?  If so, you...

September 2018 News!


Happy September Everyone!

I am excited to share the following with you . . . 

Founded in 1993, the CHARGE Syndrome Foundation...

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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