Families Matter

Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

See previous Families Matter Stories

Meet Paul Uribe

Paul smiles

Paul, age six, lives in California with his parents. He has combined vision and hearing loss due to CHARGE syndrome. His parents have made it a priority to connect with other families through the CHARGE Syndrome Foundation, their state deaf-blind project, and social media.

Connect and Learn

Mom holding son  Family Engagement Initiative

Join us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.


Family Stories Icon  Family Stories

Follow this link to the National Family Association for Deaf-Blind (NFADB) website to find collections of stories from families of individuals who are deaf-blind.

Family Resources Icon  Family Resources

NCDB Family Brochure  - Quick overview of NCDB and children who are deaf-blind. (Español)

Family Resources Flyer - Find information for families available from NCDB and other national organizations.

Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families. 

Family Fun Facts - Join us on Facebook for our weekly post (every Friday) highlighting a family.

Family Resources

Please select your state or
Log In to see Useful Contacts.

Other Useful Contacts

  1. 1 State Project Family Engagement Coordinators
  2. 2State Deaf-Blind Projects
  3. 3 National Family Association for Deaf-Blind
  4. 4 Helen Keller National Center Regional Reps
  5. 5 CHARGE Syndrome Foundation
  6. 6CHARGE State Parent Liaisons
  7. 7Usher Syndrome Coalition
  8. 8State Parent Centers
  9. 9iCanConnect

Recursos En Español para Las Familias

Recursos en Español para Las Familias

Cumpliendo Sueños: Cómo Preparar a los Jóvenes con Sordoceguera para una Vida Independiente

2016 - 2017 Seminarios de español para Familias

DB 101 en Español

2015 Transiciones en la Vida del Estudiante con Sordo-Ceguera

2015 Identificación e Intervención Temprana

Primeras Interacciones con Ñinos Sordo-Ciegos

Perspectiva General sobre la Sordo-Ceguera

Ñinos Sordociegos

Otros Recursos

Family Discussions

July 2019 News!


Happy (almost) July Everyone!

Every month, NCDB creates a Family Learning Opportunities Flyer to make families aware of ways they can connect...

F2FC 2019-2020 registration is open!


Hello Everyone,

F2FC 2019-2020 registration is open until August 10, 2019. 

We are offering 9 groups for English-speaking family members and...

June 2019 News!


Happy June Everyone!

Every Friday NCDB posts a Family Fun Fact on Facebook and Twitter. These stories, photos, and videos celebrate...

May 2019 News!


Happy May Everyone!

I’m not sure if you agree, but my favorite season is spring. It marks the finish line of...

April 2019 News!


Happy April Everyone!

Spring is often the time when teams begin meeting to prepare for student transitions in the fall. Making...

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

Tour This Page Website Help
Help for this page

Help Guides & Tutorials