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For Familes

Families Matter

Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

See previous Families Matter Stories

Meet Ava Bullis as She Transitions to a New School

Ava, with sunglasses resting on her head, smiles at the camera.

Ava lives in New Jersey and has combined vision and hearing loss due to Usher syndrome. Her family recently moved to a new town, and she changed schools at the beginning of fifth grade. Parents, administrators, and teachers worked together to make the transition as smooth as possible, and she's thriving in her new school.

Connect and Learn

Mom holding son  Family Engagement Initiative

Join us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.

 Family To Family Communities (F2FC)

This project brings families from across the nation together to share the journey of raising a child who is deaf-blind.  Monthly meetings are held via phone or video conference and hosted by 2 facilitators who have participated in leadership training. If you are interested in more information, contact Carol Darrah.

 Family Resources

NCDB Family Brochure  - Quick overview of NCDB and children who are deaf-blind.

Family Resources Flyer - Find information for families available from NCDB and other national organizations.

Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families. 

Family Fun Facts - Join us on Facebook for our weekly post (every Friday) highlighting a family.

Family Stories - Check out the National Family Association for Deaf-Blind's collection of stories.

Family Resources

Please select your state or
Log In to see Useful Contacts.

Other Useful Contacts

  1. 1 State Project Family Specialists
  2. 2State Deaf-Blind Projects
  3. 3 National Family Association for Deaf-Blind
  4. 4 Helen Keller National Center Regional Reps
  5. 5 CHARGE Syndrome Foundation
  6. 6CHARGE State Parent Liaisons
  7. 7Usher Syndrome Coalition
  8. 8State Parent Centers

Recursos En Español para Las Familias

Recursos en Español para Las Familias

Cumpliendo Sueños: Cómo Preparar a los Jóvenes con Sordoceguera para una Vida Independiente

2016 - 2017 Seminarios de español para Familias

DB 101 en Español

2015 Transiciones en la Vida del Estudiante con Sordo-Ceguera

2015 Identificación e Intervención Temprana

Primeras Interacciones con Ñinos Sordo-Ciegos

Perspectiva General sobre la Sordo-Ceguera

Ñinos Sordociegos

Otros Recursos

Family Discussions

September 2017 News!


Happy (almost) September Everyone! There are so many amazing opportunities to connect and learn coming up in the weeks ahead...

New Families Matter Story


Happy Summer Everyone! If you have yet to do so, I am encouraging you to spend some time watching the...

Family-to-Family Communities phase 3


The Family-to-Family Communities (F2FC) project, a collaboration of the National Family Association for Deaf-Blind (NFADB), the National Center on Deaf-Blindness...

An inspiring Mom shares her efforts!


I am always amazed the drive and perseverance of the parents I meet in my work with children who are...

An inspiring Mom shares her efforts!


Hi all, I am always amazed the drive and perseverance of the parents I meet in my work with children...

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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