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For Familes

Families Matter

Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

See previous Families Matter Stories

Meet Liam Kenrick

Liam sits at the top of a slide.

Liam, age seven, lives with his family in South Dakota. He became deaf-blind due to meningitis at age 2½ and communicates using American Sign Language. He is also a braille reader. His mom, Sandy, has found many creative ways to make home, school, and community as accessible as possible to him.

Connect and Learn

Mom holding son  Family Engagement Initiative

Join us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.

 Family To Family Communities (F2FC)

This project brings families from across the nation together to share the journey of raising a child who is deaf-blind.  Monthly meetings are held via phone or video conference and hosted by 2 facilitators who have participated in leadership training. If you are interested in more information, contact Carol Darrah.

 Family Resources

Family Resources Flyer - Find information for families available from NCDB and other national organizations.

Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families. 

Family Fun Facts - Join us on Facebook for Friday Family Fun Facts.  Stories and photos from families. 

Family Resources

Please select your state or
Log In to see Useful Contacts.

Other Useful Contacts

  1. 1 State Project Family Specialists
  2. State Deaf-Blind Projects
  3. 3 National Family Association for Deaf-Blind
  4. 4 Helen Keller National Center Regional Reps
  5. 5 CHARGE Syndrome Foundation
  6. 6Parent Technical Assistance Centers

Recursos En Español para Las Familias

Recursos en Español para Las Familias

Cumpliendo Sueños: Cómo Preparar a los Jóvenes con Sordoceguera para una Vida Independiente

2016 - 2017 Seminarios de español para Familias

DB 101 en Español

2015 Transiciones en la Vida del Estudiante con Sordo-Ceguera

2015 Identificación e Intervención Temprana

Primeras Interacciones con Ñinos Sordo-Ciegos

Perspectiva General sobre la Sordo-Ceguera

Ñinos Sordociegos

Otros Recursos

Family Discussions

An inspiring Mom shares her efforts!


I am always amazed the drive and perseverance of the parents I meet in my work with children who are...

An inspiring Mom shares her efforts!


Hi all, I am always amazed the drive and perseverance of the parents I meet in my work with children...

Recommended Knowledge and Skill Sets for State Deaf-Blind Project Family Engagement Coordinators


NCDB is excited to announce the release of a document called Recommended Knowledge and Skill Sets for State Deaf-Blind Project...

Grief Support for Families of Children with Deaf-Blindness


With great thoughtfulness, the National Center on Deaf-Blindness (NCDB), the National Family Association for Deaf-Blind (NFADB), and state deaf-blind project...

The Family Engagement Coordinator Scarf: The Connection & Support


Since February 2015, state deaf-blind project personnel serving in the role of Family Specialist/Family Engagement Coordinator have been meeting monthly...

NCDB : The Teaching Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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