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Families Matter

Welcome to our Families Matter stories! Told mostly through video, they will introduce you to children and young adults who are deaf-blind and their families. As you get to know them, you will discover how individuals who are deaf-blind learn, develop, and live their lives.

See previous Families Matter Stories

Meet Ava Bullis as She Transitions to a New School

Ava, with sunglasses resting on her head, smiles at the camera.

Ava lives in New Jersey and has combined vision and hearing loss due to Usher syndrome. Her family recently moved to a new town, and she changed schools at the beginning of fifth grade. Parents, administrators, and teachers worked together to make the transition as smooth as possible, and she's thriving in her new school.

Connect and Learn

Mom holding son  Family Engagement Initiative

Join us in building relationships that can make a difference at the national, state, and local levels. Find the national initiative for families at this link.


Family Stories Icon  Family Stories

Follow this link to the National Family Association for Deaf-Blind (NFADB) website to find collections of stories from families of individuals who are deaf-blind.

Family Resources Icon  Family Resources

NCDB Family Brochure  - Quick overview of NCDB and children who are deaf-blind. (Español)

Family Resources Flyer - Find information for families available from NCDB and other national organizations.

Making A Profile on the NCDB Website - It's easy! Join us in creating national supports for families. 

Family Fun Facts - Join us on Facebook for our weekly post (every Friday) highlighting a family.

Family Resources

Please select your state or
Log In to see Useful Contacts.

Other Useful Contacts

  1. 1 State Project Family Specialists
  2. 2State Deaf-Blind Projects
  3. 3 National Family Association for Deaf-Blind
  4. 4 Helen Keller National Center Regional Reps
  5. 5 CHARGE Syndrome Foundation
  6. 6CHARGE State Parent Liaisons
  7. 7Usher Syndrome Coalition
  8. 8State Parent Centers
  9. 9iCanConnect

Recursos En Español para Las Familias

Recursos en Español para Las Familias

Cumpliendo Sueños: Cómo Preparar a los Jóvenes con Sordoceguera para una Vida Independiente

2016 - 2017 Seminarios de español para Familias

DB 101 en Español

2015 Transiciones en la Vida del Estudiante con Sordo-Ceguera

2015 Identificación e Intervención Temprana

Primeras Interacciones con Ñinos Sordo-Ciegos

Perspectiva General sobre la Sordo-Ceguera

Ñinos Sordociegos

Otros Recursos

Family Discussions

July 2018 News!


Happy July!

Every Friday NCDB posts a Family Fun Fact on Facebook and Twitter. These stories, photos, and videos celebrate families...

F2FC 2018-2019 registration is open!


Find the materials here:

June 2018 News!


Happy June Everyone!

Have you seen the four “Families Matter” Stories on the NCDB website?  If not, we encourage you to...

May 2018 News!


Happy May Everyone!

Here are a few things we thought you might enjoy checking out related to Family Engagement . ....

Family 2 Family Communities flyers


Hi Everyone,

In preparation for Summit, I wanted to post two flyers for the next phase of our Family 2 Family...

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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