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2017 National Webinar: Starting a National Dialogue on Finding Children with Usher Syndrome

by on Jan 25, 2017
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Nancy O'Donnell, Director of the USH Trust Registry provided an overview of the mission of the organization, the types of support they provide to families of children with UsherSyndrome, and shared information about their main product, a registry known as the USH Trust.

There is a blog post that was released prior to this webinar that has some great information. To read that post, please click here!

Recorded Webinar

Closed Captioning
Captioning (txt)

Associated Files
Powerpoint Presentation 

USH Flyers.pdf

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
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