Every Friday NCDB posts a Family Fun Fact on Facebook and Twitter. These stories, photos, and videos celebrate families of children who are deaf-blind and provide tips and ideas that might be useful to other families. They are gathered and provided to us by Family Engagement Coordinators from state deaf-blind projects across the country. Below is our archive of Fun Facts organized by state. 

To see our new posts each week, follow NCDB on Facebook and Twitter!


Soliz loves the kitchen, and recently after mealtime he started guiding us to the sink. We decided to see if he could help us wash the dishes. In the video below, he is with his dad washing out his syringe and tube using hand under hand technique. He loves helping to wash dishes!  [4/8/16]

Soliz and Camila love being outdoors! We try and go hiking and camping with them as much as possible. They can't walk independently yet, but Soliz was able to hike down the hill with assistance. They love sitting in the dirt and enjoying the fresh air with their doggie companion, Sammy. And the hike back to the car was full of proprioceptive input. They love it!  [4/15/16]

Soliz and Camila sit with their small dog on stone steps on a hike.

Camila has a very special bond with her Grandma Jojo. They swim together whenever they can. In this particular photo Camila is completely relaxed as the water helps bring her out of gravity. There are other times she is very active in the water and able to work on skills like holding onto a soft toy, something that is difficult for her to do on land. She also loves holding her breath and going under the water!  [4/22/16]

Camila floats on her back while her grandma holds her head

A family in Arizona recently ran a 5k. When they got to the finish line, they took Soliz and Camila out of their running strollers and they walked across the finish line in their walkers. This was a great way to build self-esteem as the crowd was cheering for them as they walked across and completed this awesome goal!  [4/29/16]

Soliz and Camila cross the finish line

Mayzie's celebrated her 5th birthday with her classmates (who all experience vision impairment and several experience DeafBlindness) by bringing a company to her class that allows the child to personalize a stuffed animal. They chose which animal they wanted, worked the machine to put the stuffing inside, and chose either a scent or sound to go inside. It was so much fun and we loved seeing each child's personality come through in their choices! [04/13/2018]

Mayzie at her birthday party wearing a birthday crown and turning a wheel to build a stuffed animal bear.

Meet Kim Lauger, the CHARGE Syndrome Foundation’s Family Liaison for Arizona. It looks like her family has lots of fun spending time together all about town.
If you are wondering if you have a CHARGE Liaison in your state, go here: They would love to connect with you! [02/22/2019]


Meet Casey Adams, the CHARGE Syndrome Foundation’s Family Liaison for Arkansas. Looks like she and her family have lots of fun spending time together in the great outdoors. Maybe just not right now in the cold of the winter! If you are wondering if you have a CHARGE Liaison in your state, go here: They would love to connect with you!


Over the holidays, there are always lots of sports on TV. Remember that taking time to share your love of a sport with your child can be a cool thing to experience together. Norman and his dad used to hang out and watch soccer together, and you can tell Norman loved it.  [12/16/16]

Norman and his father wear matching green and white striped jerseys

In the spirit of gift-giving at the holidays, we hope you enjoy this super-short video of a young man named Norman and his mom, Myrna. It was their Christmas tradition to surround Norman with all his presents and then they all helped him open them. We hope you remember to cherish those you love this holiday season—as they are the real gift.  [12/23/16]

Happy (almost) 2017! New Year’s Eve can be a time of excitement for all children—but it was especially true for Norman. It was a tradition of his family to celebrate New Year’s in Las Vegas. Imagine all the sights and sounds that he was able to experience. Hoping his smile brings you joy as you embark into the coming year!  [12/30/16]

[Video: Norman smiles during a New Year's celebration.]

In this video, Sonia Hernandez introduces her daughter, who is deaf-blind. (Turn on the captions for the English translation.)  [4/7/17]

Sonia Hernandez talks about why her daughter was born deaf-blind. (Turn on the captions for the English translation.)  [4/14/17]

Sonia Hernandez talks about what her daughter likes to do for fun. (Turn on the captions for the English translation.)  [4/21/17]

Valerie, who is deaf-blind, has fun exploring outdoors with her family.  [4/28/17]

Photos of Valerie at a tide pool, in a swimming pool, on a horse, at the beach, and on a seesaw


This is Liliana and she is 2.5 years old living in FL. She is deaf-blind with CHARGE Syndrome. Liliana loves all things water and the fun museums and places her mom takes her. One of her most recent adventures took place in Michigan at a Cider Mill! Liliana loved being outdoors exploring all of the different textures of the hay barrels and big tractor tires. She was able to meet all of the different farm animals. A fun experience that could replicate at home from the trip was the Corn Crib, which was a big plastic swimming pool filled with kernels of corn. Even though she couldn't eat the donuts and cider, it was still fun to watch how they smash the fresh apples. [11/23/2018]

Photo collage of Liliana experiencing the Cider Mill

Liliana was able to dress up like Snow White and attend a special morning at The Florida Aquarium. The event held was called 'Sensory Guppyween' and they started the event a couple hours before opening the aquarium to the rest of the public, in other words, this meant Liliana got to experience everything front and center. She got to feel the cool glass of the different aquariums, and an opportunity to see really big fish swim right past her hands. They had awesome volunteers and employees along the way passing out candy. They had underwater pumpkin carving by the scuba divers that work there. Smaller tanks housed things you could touch, like starfish, and other sea life. Liliana loves water so much and the weather was so nice she was able to go to the splash park. [11/30/2018]

Photo collage of Liliana experiencing the aquarium.

Ethan has CHARGE Syndrome. When Ethan was first born, he had all the odds against him, but with the love and support of family and an amazing medical team he has been able to thrive. Ethan just learned to walk independently (with minor assistance) a little over a year ago. Look at him now, going down the slide by himself, soaking up the sun at the beach and wishing his mom a happy birthday from school! He loves being outdoors and spending time driving in the car with all the windows down! [12/14/2018]

4 photos of Ethan in school, playground, and with his mom.

Alice is almost 13 in 4 days. Alice was born with a diagnosis of CHARGE syndrome. She has severe to profound hearing loss and is vision impaired in both eyes. Yesterday we just found out her vision in one eye has gotten significantly worse. Fortunately, these challenges do not stop her from enjoying experiences which she’ll tell you she loves much more than getting things. Her next dream is to attend the CHARGE conference in Dallas, TX this year where she has made lifelong friends and feels comfortable. These pictures were from their adventure to Zoo Tampa, FL where they had a great day participating in a Center for Autism and Related Disabilities (CARD) event with a sensory friendly visit with SANTA. The best part was meeting up with "Baby Lili” (her CHARGE “soul sister”) who she adores. Alice hasn't been so happy in a long time and it was beautiful to see the bond and connection between them. The Florida & Virgin Islands DeafBlind Collaborative helped this family get to the last CHARGE conference. [12/21/2018]

4 photos of Alice and her friend at the Zoo.

Kaleb was diagnosed with Trisomy 13 at birth. Shortly after, the family would also find out that he is deaf-blind. They face challenges everyday; but none are greater than the daily blessing to love and be loved by this amazing soul. Kaleb loves the outdoors, be it rain or shine. And he loves all things water, be it the beach, pool or simply bath time. He’s been the youngest of 5 for 5 years, and will soon become a big brother! [12/28/2018]

4 photos of Kaleb with his family.

Meet Carlos, Josefina, and their girls, Karolina, and Karlota who has a diagnosis of Lujan Syndrome/Treacher Collins syndrome. They live in Florida. This was a very creative and uplifting day for their family. Karolina decided to video herself and her sister doing fun activities. It was amazing to see their interactions. Karlota followed her sister’s lead; she listened and followed the directions. Josefina was afraid they were going to fall into the pool but it turned out to be a fun sibling activity. [03/01/2019]

3 photos: Two sisters jumping and a group family photo.

Javier is a 19-year-old young man with 13q deletion syndrome who lives in Florida. You will see from the pictures that he enjoys fun activities; looking at the night lights in Daytona Beach, enjoying the water park, & enjoying Disney Parks with his mom and dad. [03/15/2019]

4 picture collage of Javier participating in fun activities.

Payton is 5 years old. When she was born her family learned that she had Trisomy 18 and was told she would not likely make it one week. Shortly after she was born she failed her first hearing screening beginning the hearing loss journey. Finding the right hearing aid for her that doesn’t overload her sensory issues has been a ongoing challenge. We are currently trialing the new AdHear device. Despite these hurdles Payton loves to have fun & lives an incredibly full life without limitations! Payton enjoys going to school with her friends, the movies, traveling (she has visited 8 different states, seen the total solar eclipse, the mountains, numerous beaches, museums, zoos, aquariums and theme parks). She loves digging her feet in the sand at the beach. Payton was also promoted to Big Sister in August 2018. She is the best big sister and enjoys playing with her new baby sister, Bailey. Bailey is usually very sad when Payton is at school and refuses to play on the floor unless Payton is with her. They truly have a unique special bond! [03/22/2019]

Four picture collage of Payton with her sister, mom and dad.

Gabriel fully participates in family & community life. He has been diagnosed with Larsen Syndrome and Autism. He loved Disneyworld and spending time at a local farm. Their family motto is life is too precious and too short not to make the most of everyday. [03/29/2019]

4 picture collage of Gabriel with his family.

Jaxson is 2 and a half years old and was diagnosed with CHARGE Syndrome after birth. Jaxson also loves going to the beach! He plays in the sand for hours, digging and burying his feet and hands. Jaxson has trach and so is not able to go swimming but that doesn’t stop him from enjoying the water, he loves to put his feet in the water and kick and splash around. On weekends when we aren’t able to take a trip to the beach we fill up Jaxson’s outdoor sand table and the kiddie pool and bring the beach to our backyard. Jaxson loves to explore his world and any opportunity he has to touch, feel, taste, move and explore the world around him he takes it. [06/07/2019]

Three pictures of Jaxson at the beach and home.

This is Kody, he’s 21. He was officially a senior this year. He is DeafBlind. He attended his high school awards ceremony and received these two awards. He is with his intervener who works with him at school. Since learning tactile sign language his world has changed. He is able to request his wants and needs. Kody of course, has mastered what he wants to eat and drink and go home (while at school). Kody has one more year of school and we are hoping he will continue to make progress. [06/14/2019]

Kody receiving awards

The Florida parent state liaison for CHARGE Syndrome arranged a meet and greet for families that attended The Annual Family Café, the nation's largest cross-disability event in Florida. These pictures show the love and connection these families experienced! [06/21/2019]

Three picture collage of a family at the conference.

We are the Eder family. Berniece Ann is 11 years old. She is diagnosed with Pyruvate Dehydrogenase Deficiency, including, DeafBlindness. These pictures were taken at the Annual Disability conference in Orlando FL. [06/28/2019]

Three picture collage of Eder family.


Ivey's mom, Gwen, writes: "In the spirit of summer traveling and vacations, I would like to share how Ivey entertains herself while traveling in the car. Whether we are taxiing Ivey’s brothers to practice, running an errand, or driving to the beach, this keeps Ivey entertained and engaged. I found a storage container that provides the perfect OT footrest and stores Ivey’s extra medical supplies that may be needed while traveling, yet cannot be found in Walmart. I hung a car clothes bar across the backseat, added sensory items, and voila, Ivey’s very own “little room,” automotive style. This has been our saving grace in the many hours spent in my car traveling across town, to doctors, and especially on long trips. Oh, and if you want to spice things up, use Velcro to attach a musical toy or a switch to the lid of the container and let their little feet play."  [7/7/17]

Ivey plays with her


"One morning Dominic was getting on the bus & his bus driver turns & says you are really lucky to have him. It was one of those moments when I stopped smiled & said 'Yes I Am!' I feel lucky to have him but it’s even better when someone else notices!" [11/09/2018]

Dominic smiling on his mothers lap.

Dominic's mom walked into his room one morning and asked what Dominic was doing and he said, “drinking coffee!” Kids say the funniest things. [11/16/2018]

Dominic sits on his bed with a mug.

It’s always fun to get spruced up for picture day at school. Ready, set, smile! What a great picture of these siblings. [12/7/2018]

Two siblings stand, smiling ready for picture day.


From infancy, Hannah had a feeding tube and doctors were concerned about her being able to become an oral eater. With determination and lots of support from therapists, Hannah no longer has her feeding tube and is clearly savoring the tastes of all kinds of food. YUMMY!!!!  [8/25/17]

Hannah eats a slice of watermelon

Hannah has been doing water therapy for years and never felt brave enough to put her head under water until the other day! Once she learned how, she couldn’t stop! The lesson from this story? When the time is right, your kid will surprise you, and their potential is endless. Go Hannah GO!  [9/1/17]

[Video: Hannah is in the pool wearing goggles and arm floaties. She holds her breath and ducks her head under water for a few seconds at a time.]

Hannah's mom Samantha writes: "Recreation is such an important part of a full life for everyone! Hannah recently went out and picked out a brand new bike (with training wheels) and was off in no time flat. Watch out! Here she comes!" [10/20/17]

A young girl is on a sidewalk riding a bicycle that has a basket and pink streamers.

"Halloween is such a fun time for children -- but trick-or-treating in the dark can kind of be tricky for a child with combined vision and hearing loss," writes Hannah's mom Samantha. "Here's a tip...Try going out before it gets dark to help your child navigate more easily and let your neighbors know you'll be stopping by a wee early." [11/3/17]

Teed family children (with their father) in Halloween costumes ranging from Harry Potter to an animal to a witch. They hold pumpkin baskets for candy. It's daylight and they are outside of a building.

"Hannah is tearing it up on the dance floor at a friend's wedding," writes Hannah's mom Samantha. "Her favorite part was having her dress twirl on the dance floor and the wooden floor helped her feel the rhythm! Way to swing, Hannah!" [1/26/18]

Two images of Hannah dancing outdoors--one with a boy another by herself.

"Meet the Teed family, packed in their car with all of the needed gear as they traveled to the 13th International CHARGE Syndrome Conference from Iowa to Florida. It’s an event they try to never miss. Everyone in the family can’t wait to see old friends, meet new ones, play and learn. If you are a family member of someone who experiences CHARGE Syndrome, it’s a must do event!" [2/02/18]

Teed family in the car

"Is that a lion? Nope, it’s Hannah. This young girl from Iowa couldn’t resist getting her face painted at the 13th International CHARGE Syndrome Conference." [02/09/2018]

Young girl with lion face paint.

"Never underestimate a day of fun with your Dad and Sister. Hannah loved all the spills and turns at the theme park the family visited. Advice from her Mom and Dad is don’t be afraid to let your child try new things, you may find that you are more afraid than your child." [02/16/2018]

Strip of three photos. First is two young girls walking towards a farris wheel. Second is dad with two daughters. Third is a young girl on a ride at a theme park.

"Sensory is fun! Playing in the mud is about as fun as it gets for these three siblings. Who fell in first of all the siblings?" [02/23/2018]

Two sisters and their brother jumping in a mud puddle.

Families in Iowa enjoyed spending time “away” from the cold at the pool. Temperatures are below zero for several weeks with multiple snow storms. Its a chance to meet new friends, play together and share support for each other’s families in the “warm” weather. [02/22/2019]

Two photos of children and adults at the swimming pool.

Meet Samantha Teed, the CHARGE Syndrome Foundation’s Family Liaison for Iowa. They will be at the upcoming CHARGE Syndrome Conference in Texas. Want to know more about the support your state parent liaison, visit [07/05/2019]


This clipboard was created by a parent in KS who wanted her son to learn the steps in his daily routine. First he gets up, gets dressed, and eats breakfast. Next he heads to the bus and rides to school. When he gets home, he needs to hang up his backpack, then he can ride his bike, have free time, get undressed and showered. Then he eats dinner, has more free time, and then prepares for bed. Why would you want to create a schedule like this? Because it helps with prediction and learning routines. When a child knows what's coming next, they are more successful in gaining independence.  [9/4/15]

Clipboard with strips of Velcro to which picture symbols are attached

Would you like your child to be more independent in the shower and make sure they don't forget a key step? A parent in KS created this visual schedule and mounted it on the inside of her son's shower so that he could be more independent when getting washed up.  He peels off an icon on the left and moves it to the Velcro strip on the right so he can visually track what's next to be done. Who knew bathing and literacy could be taught at the same time?  [9/11/15]  

Two vertical strips of Velcro with picture symbols attached

Would you like your child to become more independent when putting away their laundry or locating clothing items when getting dressed? A parent in KS placed these icons on her son's dresser so he could put his laundry away where it belongs and also find what he needs to get ready every day.  [9/18/15]

A dresser with a picture symbol on each drawer

As all parents know, anytime there is a significant change in routine, it can create anxiety for our children. In order to minimize frustration and confusion, this schedule was created by a parent whose son recently graduated from high school. It is a dry erase board that she mounted to her son's bedroom wall that shows his weekly schedule. It combines work and recreation (with certain activities being fixed and others fluctuating based on his needs and interests). Each week he is able to select recreational activities that he would like to do beyond work and his usual household chores.  This is still a work in progress, but his mom says it has already made a big difference in keeping everyone on track with what her son needs to accomplish daily and allows him to predict what lies ahead.  [9/25/15]

Whiteboard schedule with picture symbols attached

Teaching children who experience combined vision and hearing loss about abstract concepts can be a challenge. Take Santa Claus, for example.  A mom in KS took her son to meet Santa in an effort to show him that he's a person, he wears a soft red suit, and he has a fuzzy white beard and white gloves. Not so sure Devin liked the experience, but at least now he has a greater understanding of the meaning of this thing called "Santa."  [12/25/15]

Devin stands in front of Santa

Have you ever taken your child with a combined vision and hearing loss on an airplane? For some this can be a scary experience. Devin recently took his first trip, and to prepare him for the journey, his mom had him help pack, marked off a trip countdown, read him stories, and showed him pictures of where they were going. She also brought all kinds of toys and things for him to do on the plane. The airline was extremely helpful and allowed him to be the first person to board the plane so he'd have more time to get used to it before everyone else got on. All of these strategies helped him feel safe during the experience.  [1/15/16]

Devin looks out the plane window

Sports sometimes are an integral way of actively involving the community in the lives of children with combined vision and hearing loss. Check with your local Special Olympics or Children's Miracle Network and see how you can get your child involved as a member of a team. It's sure to be a win!  [1/22/16]

Devin runs with a partner on a baseball field

The importance of touch can never be underestimated for a child with combined vision and hearing loss. For Devin, it's a way of saying I care about you and I know you care about me. Make sure to hug your kiddo today!  [1/29/16]

An adult hugs Devin, who is smiling

Life as a deaf-blind young adult can be so much fun! Every Tuesday night Jackie hits the town to see a current release at her local movie theater with her family and friends (depending on what movie she selects). Bring on the M&M's!  [6/3/16]

Jackie smiles in front of an M&M's poster at the movie theater.

Ladies Night Out (away from your parents) should be something that every young adult gets to look forward to. Luckily for Jackie, she has a great friendship circle that allows her to "cut loose" without her mom and dad by her side.  [7/1/16]

Jackie smiling with three of her friends around her

Need some inspiration? Meet Jackie Kopaska, CEO of Jackie K Bags. You can see her bags and place an order through her Facebook account, JackieKBags! If you will be attending the NFADB conference next week, she will also have a table set up to sell her beautiful bags!  [7/8/16]

Jackie sits in front of a display of her bags

Trusting bonds are formed by consistent access to your communication partner and providing reliable routines. When traveling, make sure to take frequent breaks to explain and show your child what’s coming next so they can anticipate and feel safe.  [7/15/16]

A boy and his mom pose in front of a brick building

When on a vacation that requires a lot of walking, sometimes families need to make accommodations for their child. Because Ryan fatigues easily and ambulates at a much slower pace, the Roberts family sometimes chooses to use a wheelchair for Ryan so he can stay out longer and be a part of the adventure. Who would want to miss that view?  [7/22/16]

Ryan and his family pose in front of a mountain landscape.

Other than riding in the car, there’s nothing better than swimming for Ryan! Having him wear a life vest allows him a sense of security and freedom to independently explore and play with his siblings.  [8/12/16]

Ryan in the pool

Friendship is an integral part of living a happy and complete life. Since an early age, Ryan’s parents have made it a priority to maintain consistent friendships for Ryan. This helps allow him to celebrate and communicate successfully, which makes for a much happier birthday!!!  [8/19/16]

Ryan with a friend at his birthday

Take me out to the ballgame! Make sure to have your child be a part of all family activities even when it may require a little more time and effort. Little brothers enjoy having their bigger brothers there to cheer them on!  [8/25/16]

Ryan with his younger brother, who is dressed in baseball gear

When summer finally hits and Ryan has not been swimming for awhile, there’s a slight bit of reluctance. His mom, Kelly, provides him with a little extra support from behind so he can still see the water and freely use his hands to explore. Within a few minutes, he’s ready to go!  [9/2/16]

In the pool, Ryan's mom supports him from behind

Devin loves anything sweet, but especially ice cream. Nice warm days are a perfect chance to take your dessert outside and devour it. He's gonna be sticky for sure!  [5/26/17]

Devin eats an ice cream cone

Expressive communication for learners with deafblindness can sometimes be a challenge. But there's no doubt that Devin is loving life in this picture! What makes your child giggle? Whatever it may be, do more of it today.  [6/2/17]

Devin grins

This is what happens when Mom takes too long in the morning. Sometimes you've just got to take matters into your own hands!  [6/9/17]

Devin sits on the counter, smiling and holding a sealed cereal cup.

Friends come in small and big packages. Remembering to get down on the child's level is critical for mutual interaction and communication.  [6/16/17]

A young man kneels down while Devin climbs on his back

The end of the school year can be such an exciting time! As you can see, Devin is celebrating and can't wait for what summer brings!  [6/23/17]

Devin stands outside, smiling

Exercise is a valuable part of mental and physical health. For Jake, going to the gym is not only recreational, but social, fun, and a chance to see all the machines in motion.  [6/30/17]

Jake and his mom use the machines at the gym

Ever considered taking your child to an amusement park? Although Jake loves the lights and sounds of the arcade and the cool prizes, the highest, fastest, most gut-wrenching roller coasters are the BEST in his book! Go MAMBA!!!  [7/21/17]

Jake at an amusement park

Sometimes we volunteer to do something fun like filling balloons for a special event. Balloons are always fun!!! Jake puts them in a designated area once the strings are tied.  [7/28/17]

Jake fills balloons with his father

Jake loves to take apart and rebuild electronic things and then make presentations about them. Here's one he did: Old TVs Are Awesome  [8/4/17]

Riding the bike around the neighborhood is always a fun way to pass time. It's a great orientation and mobility lesson and exercise all rolled up into one.  [8/11/17]

[Video: Jake and another young man ride a two-person tricycle down a residential street.]

"When it's too hot to go out...Jake has to take video," says Jake's mom, Dee. "With help, he uses an app on his iPad to edit and piece pictures and video together. Then using an adapted color-coded keyboard with word prediction and some help for spelling, he writes phrases about the pictures and videos. Then posts them to YouTube so he can watch them over and over."

Check out the video he created about his favorite model trains!  [8/18/17]

From the 7 Billion One's site comes a story from Kansas. "Ryan's story - 'Life is tough, Ryan is tougher' There is just so much...15 years and there is still so much. So much love, so much grief, so much excitement, so much worry, so much effort in persevering day to day. So much for our son Ryan and for us - those who love him and who champion him." [1/12/18]

With spring finally here, think about taking a trip to the Zoo with your child. It’s an endless sea of sensory experiences! [4/27/2018]

Devin stands in front of glass water tank where an animal lives at the zoo lives. Devin reaches out to touch a bear statue. Devin smiles in front of a glass wall where a monkey is looking out.

Ready, Set, SHOP! Taking your child to the store can be a great way to teach them where to locate their favorite items and increase their independence in the community. [05/04/2018]

Devin standing in front of a grocery cart at the store. Devin pushing grocery cart in store.

As life moves faster and faster each day, remember to take time to bond and connect with your child. That’s where the real communication starts. Devin and his mom, Courtney clearly have it mastered. [05/11/2018]

Devin leans over to kiss Courtney, his mother, on the cheek

Successful communication starts with feeling secure and having ample wait time to ensure that the communication exchange can happen successfully. In this picture, you can see how powerful it can be when done well! [05/18/2018]

Devin sitting in the lap of his brother and sister.

What chores do you have your child do at home? Even partial participation in a routine activity fosters independence and promotes self-worth. This week think about one thing you could add to your child’s routine and give it a try! [05/25/2018]

Devin puts a dish in the dishwasher.

Let’s bowl! Devin loves to hang out with friends and family and what better place than the bowling alley. Ask for the ramp and bumpers and you are all set! [06/01/2018]

Devin at a bowling alley with two friends.


Christopher and his mom Kim took a vacation to the “Alligator Attraction” which is full of exotic animals. The staff provided a special tour for their family so that Christopher could learn more about the animals through touch. When they left, the owner let them know how grateful he was to have been able to share the experience with Christopher and the family was thrilled. [09/28/2019]

Collage of three photos at an exotic animal zoo.


Sibling love can be a powerful thing! Grace loves to goof around with her brother Jack. [07/27/2018]

Two children wear big eye toy glasses.

Enjoying a picnic on the lawn can be a fun way to spend a hot summer day. [08/03/2018]

Grace and Jack sitting on a blanket having a picnic.

If summer gets too hot, how about going inside to cool off for some adaptive ice skating? Grace is clearly having a blast! [0810/2018]

< style="width: 252.299px; height: 337px; float: none; margin: 0px;" alt="Grace laying on a sled at an ice skating rink.">

What a cool experience to be able to feel a live lobster on the rock in Maine. Good thing there are bands on the lobster’s claws! [08/17/2018]

Grace reaches out to touch a live lobster.

Playing in the sand provides the ultimate sensory experience. Grace is clearly enjoying her time snuggling on the beach with her brother, Jack. [08/25/2018]

Grace and Jack sitting in sand with towel wrapped around each other.

Taking a break from the madness of daily life is an important part of self-care for families. The Dagley family knows this well & loves going to Maine for some R&R. Remember to take a minute to enjoy being outside with your family this summer, even just a walk. [08/31/2018]

A family of four sit on a front porch.

Grace loves her dog, Maggie. Snuggling is such a good thing! [09/07/2018]

Grace laying down with dog.

Up for an adventure? If so, you may want to give canoeing a try. Just remember your life vest! [09/14/2018]

Mother and daughter in a canoe.

Grace and her brother, Jack are enjoying a beautiful day adventuring in New Hampshire. Have you taken a bike ride lately? [11/02/2018]

Grace and Jack riding a bicycle outside.


Jacob is truly a member of his local community. He lives in his own home with 24-hour support, through a Medicaid Habilitation Waiver, and owns his own nonprofit business, Jacob Can. In the state of Michigan, soda cans come with a ten-cent deposit and people are always accumulating too many saved cans and hate taking them back to the store. Jacob provides this service to them for the redeemable deposit, which he donates to the CHARGE Syndrome Foundation. The funds provide scholarships for families to attend the biennial conference while giving Jacob a way to be a meaningful part of his local community and the CHARGE community.  [5/5/17]

Jacob and his friend Heather pose, smiling

Here are one family’s thoughts about a summer camp for the entire family: “ASL Family Camp has provided our family precious memories that will last a lifetime. We have made invaluable professional connections as well as forever friends that we can't wait to see every summer. All of our children enjoy barrier-free communication and bonding moments that keep us coming back every year."  [5/12/17]

A young girl with her face painted stands in her walker, smiling

Jonathan loved books but never liked storytime at the local community library. He couldn't see or hear well enough to follow along and so instead of sitting, he always ran away. Mom and the librarian hatched a plan. Jonathan's mom found a way to get him an FM system, and the librarian agreed to bring a second copy of the stories to all PJ storytimes, just in case Jonathan showed up. The difference was immediate. Instead of running away, Jonathan now enjoys PJ storytime with other preschoolers.  [5/19/17]

Jonathan and his mom at storytime


Encourage interactions amongst family and friends even if everyone is not fluent in their primary language/mode of communication. Meet Molly and her cousin, Violet. This pair of New Jersey 3-year-olds love to play together. Their family teaches Violet different ways to help Molly during playtime, including: speaking face-to-face with her, tapping her on the shoulder to get her attention, and holding her hand while they walk on uneven surfaces.  [10/2/15]

Molly and Violet play together

Let’s get organized! We all know what a struggle it can be finding all the accessories that accompany our children, especially at times when we are ready to walk out the door. Create a convenient place to store these items that makes them easily accessible. This promotes independence and reduces frustration for everyone! And don’t forget the double-sided Velcro so everything stays in place!  [10/9/15]

Glasses, CI processors, and other gear stored in a plastic box with compartments

Be the Educator! Meet Ava—this New Jersey 9-year-old takes the time to educate her peers about hearing loss, vision loss, and deaf-blindness. She makes it fun by doing simulation activities so her friends have an opportunity to walk in her shoes. This enables her friends to be a part of her life while being aware of why modifications are being made in the classroom.  [10/16/15]

Ava's class learns about deaf-blindness

Let's get creative! Meet Chad, Matty, and Nolan! This New Jersey trio sure knows how to have fun! Their family uses Mr. Potato Head accessories to decorate their pumpkins. This is an amazing tactile strategy to enjoy the holiday festivities and allows them to make independent choices. This activity can also be enjoyed throughout the whole month. Thanks for sharing, boys!  [10/23/15]

The boys pose with their decorated pumpkins

Sports can be fun for everyone! Many communities offer support sports programs. These brothers enjoy participating in a hands-on soccer program. They play soccer with buddies who can provide environmental information to support the overall "goal"! It's a wonderful program that gives the boys an opportunity to be part of a team, interact with peers, and get some fresh air and exercise.  [10/30/15]

The boys on the soccer field

Look out for Ava, one of our NCDB kids from New Jersey! Ava and her family are on a mission to find a cure for Usher syndrome in a challenge spearheaded by Rebecca Alexander. Ava is the inspiration behind Ava’s Voice, a local nonprofit in New Jersey that supports children and families affected by hearing and/or vision loss. Since Ava has found her voice, she uses it to raise awareness for all children with deaf-blindness. Now she is hoping to get the singer Usher's attention in hopes that he will host a benefit concert to raise funds to find a cure for Usher syndrome, one of the leading causes of deaf-blindness.  [3/3/17]

[Video: At an event at a bowling ally, Ava dances to Usher's song "Yeah!"]

Meet Ethan and Gavin—two brothers who are enjoying living life. Like most children, the boys wanted a dog. As the brothers both have Usher syndrome, the family felt concerned that a traditional dog could pose a safety risk due to the kids' vision and hearing loss. After a search, the family found a solution at Canine Companions for Independence. Recently they welcomed Erickson, an assistance dog, into their home. Erickson has been a wonderful addition to their family, in part because of the way he was trained. He looks out for the boys so they won’t trip and fall over him, and he’s also been helpful at night. Erickson will continue his training to meet the boys’ unique needs as their vision changes. The unconditional love he provides has been the best benefit of all!  [3/10/17]

The boys pose with Erickson, a yellow lab

On our recent trip to Disney, we made sure to prepare our daughter, Molly, about where we were going by showing her ASL Nook Disney. So, when she got there, she could connect all the people and places together. It was amazing seeing her little face light up when that connection was made. We also made sure during shows she had access to American Sign Language through interpreters and close seating so she could truly enjoy and comprehend all of what she was watching. Having the appropriate access in place gave us the opportunity to enjoy the moments and create amazing memories with our family!  [3/17/17]

Molly, her father, and interpreters at Disney World

As children get older, implementing needed therapies, such as physical therapy, gets more challenging. The Morrobel boys don’t like trading the activity of gym class and fun with peers for therapeutic physical services. But maybe, just maybe, PT pays off in the end. The boys clearly enjoy the active life, as you can find them engaged in sports such as swimming and baseball throughout the year.

As you can tell from the photo below, skiing has also been a great outdoor activity for the brothers and has the added benefit of being great for their core strength. In case you were wondering how the boys manage technical challenges while engaged in sports: They use Ear Gear products to keep their processors on and tinted goggles to help with the glare from the sun and snow.  [3/24/17]

The boys pose on their skis


My family and I went to Walt Disney World this summer on vacation. Carousel of Progress is my favorite show there. I like to go on it first because I get too excited about it and may become anxious. It’s pretty unique because the theater rotates. I like to sit in the front row so I can see and hear the show better!
(This week's fact is brought to you by Megan Stanger, who is pictured below.)  [9/9/16]

Megan, holding her cane, stands in front of the Carousel of Progress

When we’re on vacation I like to have down time at the pool or beach. I find it relaxing and fun, especially going down water slides. It helps me exercise and makes me feel happy! I make sure I hold onto the railing going up the stairs so I don’t slip and fall. I wear ear plugs and an ear band to protect my ears from the water so I can’t hear well with them on. When I’m at the top of the slide and ready to go down, they give me a “thumbs up” so I know it’s safe to go. I like to people watch while I wait on the line.
(This week's fact is brought to you by Megan Stanger, who is pictured below.)  [9/16/16]

Megan goes down a water slide

I love fast rides. They are fun and awesome. I don’t get dizzy but my mom does. I make sure I remove my hearing aid and glasses so they don’t fall off. I like Splash Mountain because you get wet, cool off and there’s fun songs. My family and I like to make silly faces for the big drop. We are seated in the last two rows of the log.
(This week's fact is brought to you by Megan Stanger, who is pictured below riding Splash Mountain with her family.)  [9/23/16]

Megan rides Splash Mountain

I like to do something special on vacation. This trip we celebrated my birthday with my grandparents. We had dinner in a special steak house because I am really into all things that have to do with the West and I think cowboys like to eat steak. Yeehaw! I have food allergies so we need to make sure the staff and cooks are extra careful. My parents help me with the menu and advocating so I’m safe.
(This week's fact is brought to you by Megan Stanger, who is pictured below.)  [9/30/16]

Megan and her grandparents pose at the restaurant

Megan hit a milestone this summer during our family vacation in Narragansett, RI. She turned 25 years old. To celebrate, we had a birthday hoedown that evening with friends and family. We started the day with Grandma Linda (aka The Queen) and Grandpa Allen opening gifts, a day at the beach with cousins, a special seafood dinner at Monahan’s Clam Shack and back to the house for a fun filled hoedown and yummy birthday cake. Megan helped plan the day based on her love of all things “country” but had a surprise visit from her Aunt and Uncle from NYC. Abundant smiles and “Yeehaws” were to be found all day long! [01/11/2019]

Four photo collage of Megan with family members.


Meet Zaman, daughter of the Rizvi family. Zaman is very fond of pictures. She often loves to go through her mom’s cell phone pictures and videos. Her parents and teacher came up with an idea to create an "Adventure Journal." It is a regular notebook with a picture at the top of each page and a couple of sentences about that particular picture. Twice a week they go through her journal, and she adores this time of the week. They talk about things like different colors and facial expressions. This has increased her vocabulary significantly. On the last page of the book there are reward stickers—if she does well, she earns her sticker!  [2/5/16]

Zaman with her journal

Thomas is a member of the Our Lady of Mount Carmel Polish National Catholic Church in Lilly, PA. Until a few months ago, Thomas’ participation at Mass was limited to sitting on the lap of his mother or another parishioner. This past October, we implemented a plan to give him a customized means of participation, specifically tailored to his needs. This plan includes a personal tour before every Mass to explore the church up close, allowing him to see, touch, and smell his surroundings as well as easing his transition into the Mass. All of this was coordinated by the role of the intervener. Thomas can now fully participate in a manner appropriate for his age and abilities. So far this has been a success and can be easily adapted in a variety of contexts.  [2/12/16]

[Video: During Mass, Thomas and his mom sign "Communion." Thomas goes to the front of the church and receives a blessing from the priest.]

Julia loves participating in sports! Our family has always loved skiing. Two years ago through VIP Sports, Julia learned how to ski and she loved it! Participating in sporting events is different for a person who is deaf-blind, but we always tell Julia to focus on what she can do!  [2/19/16]

[Video: During a skiing lesson, Julia zigzags back and forth down a hill.]

So many activities revolve around food. This year our son, Daniel, moved into a house with a roommate. Daniel is 21 and has a life-threatening allergy to milk protein. Now that Daniel is living on his own, it took some creativity to ensure he could still join his roommates and friends when they go out to eat. We decided to go to the surrounding restaurants and ask if they could accommodate him. With the restaurants' support, he packs his own meal and the restaurant heats the meal up for him. He also often orders a Sprite or Coke with his meal. Daniel loves the social aspect of going out to eat, and by taking a few minutes to preplan, he is able to enjoy this activity with his roommates a few times a week!  [2/26/16]

Daniel smiles while eating at a picnic table

Brock Kitterman is an eleven year old triathlete with deaf-blindness. To date he has completed 26 triathlons, which take a lot of preparation. We arrive at the venue three hours in advance of the other athletes to “walk the course.” A typical course for Brock’s age group is 200 meters open water swim, 6 mile bike ride, and 1 mile run. During the course walk, we need to be sure to point out any obstacles (potholes, areas of heavy road debris, drop offs such as curbs or uneven pavement, sharp bends, tree branches or roots). Brock turns on his inner GPS and is able to remember these areas once the race begins. We inform the race official that there is an athlete on the course with deaf-blindness and get special permissions to hand him his eyeglasses when exiting the water. Brock wears a special bike license plate on his helmet stating that he is both vision and hearing impaired so the other athletes are aware when passing him on the course. This has been a great adventure for Brock.  [4/1/16]

Brock competes in a triathlon

Shane is a vibrant 9-year-old boy who zealously loves life and everything it has to offer. With Shane’s deaf-blindness and his tendency to place everything in or near his mouth, his mom is always looking for new ways to make adjustments to fit his particular needs. Every Easter Shane and his mom enjoy coloring eggs. After a few memorable, fun, messy, and not always successful Easter egg projects, she found an eggcellent way for them to do it. She used two egg cartons, one filled with plastic eggs corresponding to the colors of dye and one filled with hard boiled eggs. She put the carton of plastic eggs in front of Shane and asked him to choose an egg. Once he picked a plastic egg he liked, he put it up to his nose to get a good look and eventually placed it in his mom's open hand. As soon as he made his choice, she slid the plastic eggs just out of his reach. She then showed him that she was choosing a plain hard boiled egg and placing it in the color of dye that matched the plastic egg. Once the hard boiled egg was done, she took it out of the dye and had Shane help dry it off with paper towels. They repeated the egg-dying process until he signed "all done." The last step of an Easter egg project is always Shane’s favorite: consumption!  [5/6/16]

Shane places an egg in his mom's hand

Nate is four years old and has dual sensory impairment. Nate’s early intervention hearing support teacher educated his parents about the “right ear advantage”—they should speak into his right ear to maximize his hearing. In order for Nate to engage with family, friends, and teachers, a strategy was developed to help them remember which ear to speak into. They simply put a fun, colorful sticker around the right temple of Nate’s glasses frame. Oftentimes they get stickers that Nate is most excited about like Star Wars or Ninja Turtles. This small step has enabled Nate to more fully participate in activities and routines, learn from his environment, communicate and interact with others, and experience a sense of inclusion and belonging.  [5/20/16]

Side profile showing a rocket ship sticker on Nate's glasses

Jonathan's illness came along, and suddenly his parents found themselves thrust into the world of special needs parenthood. As a mom, wife, and caregiver, Jonathan's mom felt like she was barely keeping her head above water. Everything was so overwhelming, from the daily cares of life to the therapies. As much as they wanted to take some control of the situation by doing everything they could, they needed a hand. Accepting help has allowed her to sleep, and that may seem small, but sleeping has made Jonathan's mom feel human again. She can appreciate the small things in life, like taking time to plan an egg hunt for the kids.  [5/27/16]

Jonathan hunts for eggs with his sister, who has her arm around him.

Savannah loves music; it's all about the beats and bass. We're not sure if she hears the words or cares about hearing them, but we're positive she feels the bass. When we are at church, she loves to shake the tambourine, too. We bought her drums, a keyboard, a guitar, and a violin, and none of them work better for Savannah than her hands. She uses her hands to make a beat and uses everything around her as her instrument. She uses the walls, tables, and closets—they all make different sounds depending on the material. She'll even enlist the people around her to duplicate the beat, and that makes the sound much louder.  [6/10/16]

[Video: Savannah sits on the couch, beating it rhythmically with her hands as she sways from side to side.]

Charlotte has been working on her alphabet over the past few months. She can now recite the whole alphabet and she visually recognizes letters A–R on her letter tiles and flash cards. She is also learning to sign the alphabet! We feel that exposing her to the alphabet several different ways (verbally, visually, and signed) has helped her to learn the letters and commit them to memory quicker.  [1/6/17]

[Video: Charlotte signs the letters of the alphabet while her mom prompts her offscreen.]

Tori is 12 and was born with CHARGE syndrome. She is legally deaf-blind and hates to be out in direct sunlight. Her family loves to go to Disney World, so finding a way for her to keep the sun off was a must. Keeping glasses on her while wearing a hat is difficult, as the hat tends to knock her glasses off. They have a medical stroller with a canopy, but it still doesn't offer enough coverage. This sunshade from Kidpottamus is made of a stretchy fabric with 4 Velcro straps so it will go over the top of any stroller canopy. The large size and ability to attach the straps low on the side rails allows for the shade to cover not just her face but her legs as well, which gives her sun protection. It also helps with wind and rain. She can still see what's going on around her, too.  [1/13/17]

Tori and her family at Animal Kingdom

Every year since Annaleigh was born, she has been given a musical/light-up/dancing stuffed character from her grandmother. This started because she loved music and would focus on lights. She isn't able to squeeze the switch hard enough with her hands sometimes, so she will press with her mouth. The other thing her parents do is give her sensory experiences. The family made homemade pizzas on New Year's Eve, and even though she didn't get to enjoy this by eating, she thoroughly enjoyed playing in the sauce, squishing the dough, tasting the ham and pineapple, and playing with the cheese in her fingers. She did this while her mom cooked!  [1/20/17]

Annaleigh sits at the table with two pizzas in front of her.

Hunter McGowan, 21 years of age from Pennsylvania, is an individual who experiences deaf-blindness due to Usher syndrome. Hunter made a personal choice, knowing the responsibilities it takes, to become a guide dog user. He did extensive research in high school on various guide dog schools across the country. He made the decision to apply at Guiding Eyes for the Blind (GEB) in Yorktown Heights, NY. After a GEB region representative assessed his Orientation and Mobility (O&M) skills and community and home environments, he was accepted into the school. At GEB, he was matched perfectly and received training with his guide dog, Atlas. They are approaching their third year of being a team. Atlas has given Hunter greater independence, companionship, and true loyalty. As a team, they both work hard and play hard together! Atlas has allowed Hunter to navigate and experience a whole new world. This choice may not be for everyone, but for Hunter it was the right choice!  [1/27/17]

[Video: Hunter and Atlas cross a street.]

This video shows Kayla (age 12) signing the ABC's to her little brother Kase (age 2). Kase feels his sister's hands and calls out each letter as she signs C through L. So cute!!!  [9/8/17]

"Michaela was having a lot of problems going to sleep and waking up for school," writes Michaela's mom, Lisa. "She was also refusing to brush her teeth. To help with her mornings, I learned a trick from an article that explained the morning situation something like this…A child is like a bank. You need to put in before you can take out. So I started waking Michaela up 10 minutes earlier than necessary and would snuggle in bed with her, giving her hugs and kisses to wake her up gently. This has worked wonders for her mood and cooperation.

"With regard to the teeth brushing, a simple solution was to install the Disney Magic Timer app on my phone. Now she LOVES brushing her teeth with a different Disney princess each time.

"The nighttime routine was a little tricky. We got her room-darkening shades, a body pillow, and a daily chore chart that we update every night. We also read longer books before bed and let her take a book to bed with her. All this seems to help ease her into bed a little more each night."  [9/15/17]

Michaela at bedtime

Charlotte is learning her alphabet in braille! Her family found this amazing idea from a member of an online group of parents of blind/visually impaired children. The recommendation was to make a large tactile version of a braille cell with a 6-muffin baking pan and 6 tennis balls. Charlotte continues to learn and have fun in her activities that will develop into future skills for success.  [9/22/17]

[Video: Charlotte sits on the couch with a 6-muffin tin on her lap. In response to her mom's prompts, she places tennis balls in the holes to create various letters in braille.]

"We let Abby touch everything—as much as she can," writes Abby's mom, Erin. "Her hands are like her little antennae, exploring and gathering information before she experiences something. We try to find ways to let Abby experience things in a hands-on way.

"We've been on vacation a lot this summer. While on road trips, we unleash a storm of bubbles in the car using a handheld bubble machine. She loves to feel them popping on her face and in her hands."  [9/29/17]

Abby plays with a bubble machine

"Jakob has a rare disorder, Pfeiffer syndrome type 2," writes Jakob's mother, Lisa. "He attends the Western Pennsylvania School for Blind Children where every year they have baseball games for the students. Part of Jakob's syndrome is fusion of the bones which makes it very difficult to grasp a bat. The school has adapted to not only his hearing and visual impairment but also his fusion of bones for the "beeper ball" game. Jakob uses a switch to activate a slingshot to launch the ball. The ball is large and beeps. The bases also are tall and beep so Jakob can actively participate in the game. We are so proud to see Jakob participate in sports and appreciate the WPSBC for continuing to adapt to help Jakob be independent."  [10/6/17]

Jakob sits in a wheelchair with a handmade sign that reads Here We Go Jakob

"To celebrate Dr. Seuss Day check out this picture of Kase as the “Cat in the Hat” during “Read Across America”. It is never too early to promote literacy, regardless of the mode of communication. Kase was signing his ABC’s and was 2 years old in this picture." [03/02/18]

Kase dressed up at Cat in the Hat signing his ABC's

"Alex was my amazing, super sibling. He experienced deaf-blindness due to Cornelia de Lange Syndrome. I would always give him piggy back rides because he loved the movement. He would seek out this activity often. Additionally, for the tactile feeling, he would put his hand on my jaw, when I would sing to him. I also made the accommodation of singing closer to his ear, due to his conductive hearing loss. Also, because the sensory component is so important for an individual who is deaf blind, we would go outside and lie in the grass, so he could enjoy the feeling of the cool grass and warm sun on summer days. I loved to do all of these things with him, but my favorite interaction was helping him ride my scooter. I would help him stand on my old Razor scooter and ride with him on it in our drive way. He loved the feeling of the wind in his face. The best part was when he would throw his arms in the air and smile, for he felt and looked invincible. I also wanted him to know that he was safe with me. All of these activities began as natural interactions between siblings. However, as I grew in understanding, it became clear how important vestibular motion and touch were to his self-calming and spatial balance." [03/09/2018]

4 picture photo collage of a a brother and sister.

Jason is an 11 year old student at Philadelphia's Overbrook School for the Blind. With dual sensory loss and developmental delays, communication has been a challenge. To communicate with Jason the family uses verbal language, touch cues, and some sign language. Jason was not communicating using any of those methods, but after attending the Pennsylvania Deaf-Blind Project’s Family Learning Conference in 2016 and hearing Susan Bashinski talk about multiple methods of communication, the family realized how much he was communicating through gestures. Upon returning to his ESY program, the family discussed some of his common gestures and forms of nonverbal communication, and his teacher began to add to his communication plan. The family documented many things Jason told them, such as when he wants food, when he is full, being tired, wanting to move, and many others, and throughout the year, Jason's teacher and speech therapist developed "Jason's gesture dictionary.” His parents made copies for his grandparents and his riding therapist who reinforce the use of all his gestures. Jason is often amused when someone he does not see everyday correctly responds to his gestures, and of course, it has cut down on a great deal of daily frustration for him, reducing his yelling and self-injury. His mom is so relieved to know wherever Jason goes, whether his teachers change, or he sees a new doctor, everyone will have a basis to begin communicating with Jason. [03/16/2018]

Jason riding a horse.

"Nate is a 6 year old who uses a power wheelchair to get around. He loves being an active part of his community! Sometimes wheelchair-inaccessible programs and facilities in the community pose a challenge, but Nate and his parents don't let that hold him back! Instead, they advocate for equal access! Nate's family has successfully advocated for ramps and curb cuts to be added to 3 different locations in their community.

Because of their advocacy, his school’s entire recess yard is now accessible to Nate and others with mobility impairments, the sidewalk in front of his school now has a curb cut and an accessible cross-walk, and a ramp was installed to access their community playground and athletic fields. Nate’s parents state: “It's amazing how such a small thing as a curb ramp creates an inclusive and welcoming space and contributes to Nate's sense of belonging and membership in his community." [03/23/2018]

Young boy in wheelchair.

"Benjamin, who is 5, loves any type of outdoor activity; rain, shine, or snow. He has Cortical Visual Impairment and Auditory Processing Disorder. Ben really enjoys driving the farm tractor or skid steerer (with an adult along) and riding horseback. Being in control of such powerful vehicles/animals and working alongside his family gives Ben such a feeling of independence and empowerment! Ben recently got to ride the mechanical bull at the Pennsylvania State Farm Show. He’s a natural and didn’t get bucked off! He also was a big help making hay last summer." [03/30/2018]

Left: Ben smiling sitting on a stack of hay. Right: Ben riding the mechanical bull at the Pennsylvania State Farm Show.

Haley is a young woman who participated in an intense year of secondary transition planning involving her school district, charter school placement and the PA Deaf-Blind Project. Her employment goal is to work with young children in a daycare setting some day. In order to build her resume, she has volunteered the past two years in the PA Deaf-Blind Family Learning Conference child care. The families attending have found Hayley to be a great example for raising expectations and presuming competence!

Haley with her family.

LS is a 7 year old in Pennsylvania who experiences deaf blindness as a result of a congenital viral infection, cytomegalovirus. She has progressive hearing loss and a visual impairment called left homonymous hemianopsia. She has overcome so much (including radical brain surgery) and is a spunky little girl who enjoys school, painting, and playing with her friends and siblings! She is a member of the daisy Girl Scout troop and participates in children’s choir at church. It has been very helpful for her to learn to use a long white cane at school to help alert her for obstacles in her lost field of vision. We are fortunate to have an excellent orientation and mobility specialist. She has even started trialing the use of the cane in the community! We are so lucky to have the resources of the Pennsylvania Deaf-Blind Project to know that we are not alone and that there is so much HOPE and OPPORTUNITIES for children who experience deaf-blindness. [04/19/2019]

Young girl smiling with walking cane.

Daniel is 7 years old from Pennsylvania and enjoys going places with his family. Daniel’s parents know how important it is to develop the sense of touch with Daniel. His parents took him to the Smithsonian Natural History Museum and the American History Museum for a fun day. Daniel had an awesome day of adventure and exploring while visiting both museums. [04/19/2019]

Photo collage of Daniel at museum.

Dash’s family understands the importance of community involvement, social opportunities & recreation. You can see the joy on Dash’s face at a local baseball and softball training facility, which is intended for individuals of all ages and abilities. [04/26/2019]

Dash laughing while holding a bat to swing at a t-ball.


No one would have ever imagined Andrew being able to participate in such a special day. Through lots of hard work, social stories, pre-teaching and high expectations Andrew was able to participate in a family members wedding day. Andrew stole the last kiss, rocked those rings down the isle and partied like a rock star at one of the most special days of one of his favorite people on earth! [06/08/2018]

Andrew smiling in a tuxedo.   Andrew leaning in to kiss the bride.   Andrew walking down the aisle.   Andrew watching a sparkler at wedding.

Andrew's mom had to get her driver’s license renewed so she decided to bring Andrew along to get his ID renewed as well. She felt like he deserved to have his picture taken at the DMV like all the other 15 year old teenagers. [06/15/2018]

Andrew outside DMV holding his ID.  Andrew sitting at DMV with his ID

At Andrew's house Saturdays are for learning life skills like doing laundry. His family is so proud of him for how independent he’s becoming. [06/22/2018]

Andrew folding clothes on his bed.

Andrew and his mom went to eat at a local cafe. His mom told the waitress they wanted club sandwiches. Then Andrew looked at the menu and said he wanted shrimp & grits, so shrimp & grits with fried green tomatoes it was! [07/13/2018]

Andrew eating at a cafe. Andrew eating at a cafe.

Homemade holiday gifts can be some of the best of all. Andrew’s working hard making jingle bell wreaths. [01/04/2019]

Andrew making a christmas wreath with bells.


Liam's mom wrote a great article about how to make Halloween more accessible for children who are deaf-blind. Click on the link below to find out how she introduces Liam to TV characters via Braille and incorporates that into his costume selection. Making Halloween Accessible: Learning About Costumes [10/27/17] 

Facebook article preview screenshot: 2 young boys in super hero costumes, a Teenage Ninja Mutant Turtle (Liam) and a Captain America. Carved pumpkins are behind them.

Check out this timely (and crafty) article, "Thankful Turkey Jar," by Liam's mom on Happy Thanksgiving! [11/17/17]

Facebook screenshot of Paths to Literacy article. Webpage preview is of three jars decorated with a Thanksgiving theme.


What do memories look like in a child who is deaf-blind? Recently at a DeafBlind conference, Jessie's mom heard the term "memory book." This was a new concept for Jessie's family. So they started with Jessie's favorite! They began to take pictures as they baked. Then they used (with a coupon) and made Jessie's first memory book. Now they can talk about making brownies, show people how she made brownies, and remember the fun they had making them. It's never too late to start something new!  [2/3/17]

[Video: Jessie looks through a photo book called How to Make Brownies. Her mom talks to her about it from offscreen.]

Signing Time videos are a fun way for the whole family to learn American Sign Language. You can go to to get all the details and purchase them new. Also, your local public library will most likely loan them. Jessie loves watching Signing Time. Even with low vision, children will be captivated by the singing and enjoy watching other children sign.  [2/10/17]

Jessie watches videos

This is Silas in his adapted Power Wheels Wild Thing. Silas's mom found this toy with the help of a local physical therapist. The family adapted it so that it is something they all can enjoy! The physical therapist built a “brain” and made it possible for Silas to move and go when he wants to. It teaches him cause and effect, motivates him to move independently, allows him to access his environment, and provides the family a way to play outside together!  [2/17/17]

[Video: Silas drives around the front yard in his Power Wheels. When he stops, his mom encourages him to keep going.]

Austin (age 8) loves Christmas lights, so his Nana bought him some lights to keep up in his room all year long. He really enjoys watching them cycle through the colors. Red is his favorite.  [2/24/17]

[Video: Austin lies in bed and turns his head slowly to watch the light changing from blue to red to green.]

Austin and his loving and supportive family are from Tennessee. Austin is a survivor of shaken baby syndrome and is a true warrior! 

Austin loves to scratch. To keep his attention during a seemingly unrelated activity, his family added a textured placemat to the light box for him to scratch. He now really enjoys playing with his light box, while fulfilling other sensory needs at the same time.  [7/14/17] 

 [Video: Austin scratches his light box, which makes a squeaking noise.]


Once a child is able to stand or cruise while holding onto furniture, start moving all their fun toys up off the ground to motivate them to pull up to stand and play with the objects from a standing position. Increased standing will assist with developing balance, stability, and stronger muscles to prepare your child to get walking. If they sit down with the toy after this, that is great. Their reward will be playing with the toy in a stable position. However, after they are done playing, return the toy to a higher level to promote the movement again.

(This fact brought to you by Beth Foster from Texas Woman's University.)  [11/6/15]

A toddler sits on the floor with some toys

Make it a Community Party! In Houston, TX several families keep in touch through email. Together, they organize outings and use Facebook and email to invite others to join. Nearly every month they find opportunities to do things together. Sometimes the families do something a bit more informal, such as meeting at a restaurant, going to the zoo, visiting the pumpkin patch, or shopping together. Other times they meet up at community events. The community gatherings are for the entire family and have helped to forge strong friendships.  [11/13/15]

The group visits a pumpkin patch

In the spirit of Thanksgiving, sometimes it's our loved ones that are our primary motivator. One Texas Mom shared that getting to know what motivates her child allows her to naturally build in opportunities for growth that present themselves throughout their daily schedule. For example, her child really doesn’t care for toys but LOVES to interact with people. Using the couch to maintain standing position helps foster interaction with her child's favorite provider.  [11/20/15]

A young girl stands facing an adult, who is sitting on the couch supporting the girl around the waist.

Traveling can be a challenge, but with good planning and preparation fun can be had by all! Nalla from Texas really enjoyed her family’s vacation to Puerto Rico this summer. Check out ……  [10/13/17]

Screenshot of Google Slides for 2017 Summer Vacation for Nalla

Meet Valentina and her family. As they describe themselves, “We're a family of 3 empowered women.” At home, we use 4 languages: Spanish, English, French and American Sign Language. Valentina was born 15 years ago with a very rare genetic disordered, partial trisomy 14. This disorder resulted in her having a hearing and vision loss. For the first seven years, Valentina had a feeding tube and tracheotomy. These issues have not stopped her from being a happy, active, and vibrant young lady. Valentina was in the Texas Miss Amazing pageant, where her younger sister helped her during the introductions and her mom assisted her dance the Chacha Slide during her talent performance. Valentina was crowned Jr. Teen Queen, so she'll be going to Chicago in August to represent Texas in the National Miss Amazing. In June, the family is looking forward to Valentina celebrating her Quinceañera birthday party. [05/03/2019]

Three photo collage of Valentina and her family.

Meet the Hoyt family! Shannon is the youngest of four kids. She became part of their family at age seven. Shannon’s mother comes from a family where she is the only hearing person and her father comes from a family where he is the only deaf person. The entire family is fluent in sign language. When they go on family trips, they make a point to make sure Shannon has access so she can learn about the world around her. It begins with previewing what will happen. For example, for their trip to attend her sister’s college graduation this past month, they worked with Shannon to learn about buying a graduation gift, how to dress for the graduation ceremony, what kind of manners are important for the event, etc. They always high light their driving trip and have separate maps for each state. They also reference the states on a map of North America. When Shannon was earlier, they talked about how long the trip would take by how many movies she could watch during the drive. They use a story telling app that helps them make experience books by having Shannon can write sentences reflecting on each picture – not just the description but how the experience made her feel. Kristen, Shannon’s mom, encourages families to check out Pinterest to get ideas how to adapt road trips for their children. [05/10/2019]

Shannon with her packing list and bag.

Rees is a 12 year old from Houston who enjoys going to the theatre. Rees’s parents know how important it is for Rees to enjoy the arts. In the summer Rees attends The River, a theatre camp in where he gets the chance to create art. [05/17/2019]

Four photo collage of Rees at the theatre.

Meet Camron, who lives in Central Texas and has Charge Syndrome. Camron has a wonderful relationship with each of his family members, including his four brothers. His connection with his brother, Hollis, was featured in the May 1, 2019 A Sense of Texas podcast. Matt Schultz from the Texas DeafBlind Project discusses interaction and the importance of building relationships. Listen to how Camron and Hollis discovered a new way to connect by creating space for communication initiated by Camron.

Podcast -…/podcast/a-sense-…/id1440779026…

For episode transcripts please visit and click Episode Transcripts. [05/24/2019]

A football player holds younger brother.

Meet Yesdy and her family. The family enjoys music festivals because it's fun way to connect with family, friends, and neighbors. Festivals have many topics of interest for Yesdy, including people, parks, dancing, food, and trash! She always gets to look at the trash cans when we walk to our neighborhood park but doesn’t get to touch. At a recent neighborhood festival, we volunteered to empty trash. She was thrilled to finally get her hands on those trash bags! Friends and family came out to celebrate her good fortune. And she got to dance with Grandma! [05/31/2019]


Brushing teeth is a dreaded task in our household for my son who is deafblind. He is very tactile defensive when it comes to his mouth. Brushing his teeth often ends up in tears and frustration on both of our parts. A few months ago we started using a new toothbrush that I purchased on Amazon. The brush has three bristle pads at different angles which are able to clean all surfaces of the teeth at once, saving time and making easier work of necessary dental care. The amount of protest has gone down significantly and our dentist was pleased at our last visit that we are doing a much better job with his oral hygiene—a win for everyone!  [3/4/16]

A boy holds his toothbrush

Liam is very social and loves interacting with people. Liam is learning to identify both people he knows and people he meets by their identifiers. For most people an identifier may be a ring, watch, bracelet, etc. that they always wear. His mom has created identifier bracelets for the adults and kids Liam will come in contact with at Sunday School. These bracelets contain a unique object for each individual as well as their name in print and in braille. His resourceful mom created these from water bottles and objects that were around the house and also in the art room at church. There are many benefits to these identifiers, including increased interaction with peers and educating the community to encourage communication with Liam. They also use these objects in his tangible communication system to help him know which kids are present and when they are speaking.  [3/11/16]

Identifier bracelets

My son is beginning to learn to use a keyboard with the narrator engaged so he can hear what he is typing since he is totally blind. A normal keyboard is very frustrating to him because he knows the alphabet in chronological order but the order on a typical keyboard makes no sense. It was very frustrating to him to press the buttons and not hear the letters in the order which he is used to. After some investigating on the internet, I found that an alphabetical keyboard exists! The look on his face as he used this new keyboard was worth it. He loved that he could press the letters in order, and he has made more progress on this skill since switching keyboards.  [3/18/16]

Liam rests a hand on his keyboard

An iPad is a wonderful tool for a child who is deaf-blind with some functional vision. The “control +” enlarges anything on the internet so your child can see it more easily. Taking pictures or screenshots with the iPad allows you to make things that were previously inaccessible accessible to your child. The ability to zoom in enables one to see what previously could not be seen. The world becomes more accessible for the visually impaired!  [3/25/16]

A boy uses an iPad

Luke recently had the joy of becoming a big brother again. One thing we did to prepare Luke was let him explore things like Clay’s playpen and other baby items so he'd satisfy his curiosity about these new pieces of furniture in his environment before his baby brother was actually using them.  [11/4/16]

Luke explores baby equipment

Logan (9 years old) was always asking us what's going on tomorrow, this weekend, next week, even next month. So I set up different calendars on my iPhone. Among others, I have family, school, and Logan calendars which I have shared with Logan's iPad calendar (be sure to set it as view only and not edit—I learned this part the hard way). So now Logan can look at his calendar whenever he needs to, and he can see what's going on at school, if he has a day off, or if we have family plans. He can even look to see when he has a doctor's appointment, which doctor it's with, and where it's at. He has even helped me on more than one occasion when I started going to the wrong location for an appointment! Happy calendaring!!  [11/11/16]

Logan studies his iPad

Liam is an explorer and loves to explore and find the boundaries of new locations. I believe he makes mental maps of locations so he has a better idea of where he is. One way he maps out places in his head is by counting to remember how many steps are in a location. This video shows Liam exploring the lighthouse in our community.  [11/18/16]

Fall is a beautiful time of year to let your child explore the outdoors. The new sounds of the crisp leaves, the new smells and textures are a sensory delight for our children with combined vision and hearing loss. Liam loves the season of autumn and all the new experiences it brings!  [11/25/16]

Liam walks with his cane on a road covered in fallen leaves

"We recently embarked on a two-week family road trip out west," writes Liam's Mom. "In preparation of this trip, and also as a way to talk about the trip after we got back, I prepared a trip binder for my son Liam. The binder consists of pages for each day that allows him to anticipate what day it is, what we would be doing and where we would be going. I also included a tactile map so he could feel our progress as we traveled as well as a map of the different states we would be visiting. I used the various ways he communicates including Braille and tactile symbols. We used the book before, during and continue to use it after the trip as a method of making the trip memorable for him." [11/10/17]

3 vacation images - tactile book, tactile map, and Liam reading a Braille book in a car.

"Liam loves the water and spending time in the pool," writes Liam's mom Jodi. "On our recent two-week road trip, we made sure we always had a hotel with a pool so he could look forward to this special time. With the traveling, his routine was definitely taken on a wild ride and he had to be quite adaptable but we created a new routine of going to the pool every evening. He really enjoyed the different pools and knowing that at the end of a long day in the car, he would have his time of fun in the pool!" [11/24/17]

Two images of Liam in a pool with his father. Another image with his brother and mother.

"One of our destinations on our recent family road trip was Disneyland," writes Liam's Mom Jodi. "The afternoon before we ventured to Disneyland we went to Downtown Disney to do a little shopping and sightseeing. Disney is very friendly to visually impaired persons. Upon entering the area, we were greeted by a Braille map. Liam spent almost 20 minutes exploring the map and I signed things to him as he understood some of what he felt (Liam is still a beginner at Braille). It was so cool to see the expression of joy on his face as he found this map that he could understand!" [12/1/17]

Liam reads Braille on a Disney Braille Map on a slanted board that has images, text, and braille.

"Disneyland has several assistive technology devices available to their guest who are hearing and visually impaired to help make their experiences in the park more enjoyable," writes Liam's Mom Jodi. "The unfortunate part is that they only allow you to check out one device at a time so with my son who is deafblind, I had to choose which one to get. Since Liam has a cochlear implant, I decided he would get more use out of the Braille guestbook, especially during wait times since there were rides his brother would be going on that he would not. While the book was rather large and cumbersome, which we were expecting, Liam loved it!" [12/15/17]

3 images of Liam with a Braille book of Disneyland Park

"Deciding which rides to take Liam on at Disneyland took some thought," writes Liam's Mom Jodi. "We had to be able to explain in a way he could understand what would happen on that ride so he wouldn’t be scared which we could not do with every ride. We needed him to stay safe plus we needed to make sure his cochlear implant would not go flying off of his head! One of the rides we took him on was Finding Nemo. To get aboard this submarine ride, Liam had to go down about 10 steps of a winding staircase. The staff was excellent in giving us time and to explain to Liam as we went and allowed us to go at Liam’s speed. It was a challenge for him as he had never been on a spiral staircase before. He enjoyed the music and the swaying of the submarine. It was a success! He was so proud of getting down those steps! Don’t be afraid to try new things just because it may take longer and inconvenience others. People were so understanding and kind." [12/22/17]

"On our recent family trip, we were able to cross off of our bucket list seeing the Pacific Ocean," writes Liam's Mom Jodi. "The beach environment gave us an opportunity to practice some of the new vocabulary we had learned in anticipation for our trip and had the tangible items for Liam to feel them. We discovered once again that Liam hates walking on the sand but loved sitting in the sun (after being slathered with much sunscreen!). This picture is Liam laughing after knocking down the sandcastle his brother had made and making the connection that it was actually made of sand!" [12/29/17]

Liam and his mom are laughing on a sandy beach.

"Another destination on our family road trip this past summer was The Grand Canyon," writes Liam's mom Jodi. "I had done some research prior to our trip and discovered there was something really special for visually impaired visitors. At the Yavatapi Geological Museum, there is a tactile relief map of the canyon as well as other rocks available to feel the various types of rocks which compose The Grand Canyon. Explaining The Grand Canyon to Liam was difficult. He knew we were going to a “big hole” but even though I tried to teach him the sign for Grand Canyon; I don’t think he understood. Once he was able to feel the relief map and I tactile signed it again, he signed “canyon” and “rock” all by himself! He got it! I think the people around me probably thought I was crazy because I got so excited as did he!" [1/5/18]

Two images of Liam exploring a tactile relief map of the Grand Canyon. One of him exploring a vertical cross-section of the Grand Canyon.

"On our recent family road trip to The Grand Canyon, Liam had the opportunity to experience their hands-on exhibit of the various types of rocks found in the canyon," writes Liam's mom Jodi. "While he was not able to understand the different names of the rocks, we used it as a teaching tool. I had him feel two different rocks and asked him if they were the same or different, bigger or smaller, etc. He saw it as a game and had a lot of fun. Since the Grand Canyon is so visual, it was a way to make it more accessible to him and helped him enjoy our visit." [1/19/18]

2 images of Liam at a hands-on exhibit of rocks of the Grand Canyon. 1 image of Liam with his family posing with the Grand Canyon behind them.

Rylan's family found out that he loved to be pushed in running races. Who would have guessed?! It gave him a completely different feeling then just being pushed around in his wheel chair all day. They found a non profit that actually had the racing chairs made specifically for this situation. Not only did it give Rylan a feeling of relaxation and freedom, it made his parents find out how fun running can actual be. It brought tears to his moms eyes watching his hand movements in the air as people were cheering for him.

After Rylan passed away May 13 2016, his family found comfort in continuing to run and decided to take it one step further and created a foundation and running group to help give back. Rylan's Hope gives grants to families in Wisconsin for things that insurance will not cover. Visit Rylan's website for more information! [04/06/2018]

A strip of photos of Rylan and family at different races.


The power of the love of a mom can never be underestimated—especially in the life of a child who experiences combined vision and hearing loss. In this new year, be grateful for the presence of the ones you love in your life and the impact that your consistency can have on the development of your child.  [1/8/16]

A mother holds her son on her hip
For a fun summer activity, check out the free lifetime pass that is available to U.S. citizens who have been medically determined to have a permanent disability. This pass provides access to more than 2,000 recreation sites managed by five Federal agencies. For more information, visit America the Beautiful Passes on the National Park Service website.  [6/17/16]

Have a vacation planned yet for the summer? Looking for accessible places to take your child with the opportunity to engage fully? Check out this list of 32 Vacation Destinations for Individuals with Special Needs.  [6/24/16]

Please watch and celebrate the learning that occurred this past summer for families across the nation at the 2016 NFADB Symposium!  [10/7/16]

[Video: A montage of photos from the symposium. The song "Exploring My World" by The Synth Freq plays in the background.]

The start of a new school year can be stressful for children—especially one with a combined vision and hearing loss. The sudden change in routines, environment, and people can be very overwhelming. An easy strategy to help minimize stress could be making a visual or tactile calendar to allow your child to see/feel how many days are left before school begins. To learn more about calendar systems, visit this article from the Paths to Literacy site.  [10/14/16]

Upon return to school, maintaining an understanding of what a weekday versus weekend day is can be really confusing. A few tips to help with this would be to: review the upcoming day as part of the bedtime routine, have a schedule displayed where your child can check to see what’s next, and have a distinct wake-up ritual for days that are/are not school days.  [10/21/16]

A girl sits in a wheelchair while a small dog stands on her lap

Sometimes people want to use a tactile symbol to let their child know it’s time to get on the bus. Don’t make the mistake of buying a miniature bus! Instead, provide them with a symbol that represents something that they interact with on the bus—like a picture of the bus driver, a piece of the seat belt, etc. For most children with combined vision and hearing loss, this will make much more sense!  [10/28/16]

Needing some cool ideas for holiday gifts? This link provides story box ideas for holiday tales, real object advent calendars, braille apple-cinnamon ornaments, and much more! Ten Accessible Holiday Activities and Gift Guides for Children Who Are Blind.  [12/1/16]

Here is another great holiday gift idea list for children with combined vision and hearing loss. Check it out! Toys and Gift Ideas for Children Who Are Blind or Visually Impaired.  [12/9/16]

Video Alert! Take 13 minutes to watch a story about a young man with multiple disabilities, his family’s vision to help him succeed, and a collaboration with his sister to create a short movie where he played the lead role. Check out Jenna Kanell’s TEDx Talk: "A Bee Showed Me That Limits Are Lies." She explores the question: What would we be capable of if no one told us we had limitations?  [3/31/17]

'Tis the season! Do you need gift ideas for your children this year? If so, check out this blog post by Charlotte Cushman from Paths to Literacy, "Holiday Ideas for Children with Visual Impairment." [12/8/17]

Taking your child out to a restaurant? Check out this great idea from the Paths to Literacy site about creating a restaurant book with tactile symbols. [04/20/2018] 

Picture of tactile symbols book with title

Here is a great way to involve your child in the festivities this coming week. The Paths to Literacy website developed an activity to make tactile mosaic flags to celebrate the 4th of July! [06/29/2018] Paths to Literacy - Tactile Mosaic Flag

Summer time is an adjustment for students. Check out this great article that has tips to prepare for a successful summer! [07/06/2018]

In order to be a good parent it's important to take some "me" time every once in a while. Minnie and Karin, both parents of children with CHARGE Syndrome, took a trip together to refill their emotional tanks. Have you taken time for yourself recently? [07/20/2018]

Minnie and Karin stand in front of a upright table titled Magnolia Table.

Today the CHARGE community is taking the day to perform an act of kindness and share it with the The Charge Syndrome Foundation on social media using the hashtag #adaytoremember. This is to remember all those with CHARGE who have passed away. [09/21/2018]

A Day to Remember Logo

The National Family Association for Deaf-Blind (NFADB) is pleased to announce Patti McGowan (PA) as incoming Board President and the following four new members of the Board of Directors: Mary Gyori (VT), Melanie Knapp (TX), Myrna Medina (CA), and Debra Pickens (NC). The current NFADB Board commenced October 1, 2018. NFADB would also like to recognize and thank outgoing President, Clara Berg (NY), and outgoing board members, Carly Fredericks (NJ) and Heather Joy Magdeleno (AZ). Please meet the full NFADB Board by visiting the link below.

NFADB exists to empower the voices of families of individuals who are deaf-blind and advocate for their unique needs.

Pictured: Clara Berg, NFADB - Past President. Patti McGowan, NFADB - President Elect. [10/05/2018]

Picture collage: Left, Clara Berg, NFADB - Past President. Right, Patti McGowan, NFADB - President Elect.

National Family Association for Deaf-Blind (NFADB) is committed to creating a strong national network of families. Our Affiliate Network is a partnership with family organizations and NFADB to collaborate on activities that improve opportunities and services for individuals who are deaf-blind. Any family group or association which is organized and run by families of children/adults who are deaf-blind is eligible and encouraged to become an NFADB affiliate. For more information on the Affiliate Network, please visit the link below and contact NFADB Affiliate Coordinator. [10/12/2018]

 NFADB Logo , Square in burgundy color with the ASL sign “I Love You” in white,  with the fingers representing stick family members.  NFADB Acronym is written in white down the left side of the square.   In Black letters to the right outside of the square,  National Family Association for Deaf-Blind is written in full .

National Family Association for Deaf-Blind (NFADB) is looking forward to 2019 in celebration of their 25th Anniversary! Originally started by and for families of individuals who are deaf-blind, NFADB became a nonprofit 501(c)3 organization that has served families of individuals who are deaf-blind since 1994. With NFADB Membership growing, NFADB is excited to celebrate in the upcoming year with the network. For more information on the history of NFADB please visit the link below. NFADB invites everyone to help celebrate Empowering the Voices of Families during our 25th Anniversary Year in 2019. [10/19/2018]

NFADB Logo enhanced by  a 25 Anniversary wreath

On Thursday, October 25th 2018, the National Family Association for Deaf-Blind (NFADB) hosted a Deaf-Blind Awareness Fundraising Event in New York City. NFADB would like to thank those who were able to attend and support the association. The fundraising event was an interactive and fun evening for all! Guests and Supporters were able to learn about literacy for deaf-blind and activities of daily living for those who live with deaf-blindness. How fun to do a simulation of deaf-blindness while tasting wine! All proceeds will go to NFADB to continue to support families and advocacy efforts at a national level. NFADB is a nonprofit 501(c) organization and your contributions are tax- deductible. Please consider a donation to NFADB. [10/26/2018]

Two photos. Left is a flyer describing the fundraising event. Right is three woman at the fundraising event.

Looking for some fun sensory friendly Valentines activities to do with your child? If so, check out these fun ideas.  [02/08/2019]

Child's hand coloring.

Interested in learning from other families? If so, please spend some time viewing the Families Matter Stories on the NCDB website. They are packed with love and insight from families of children with deaf-blindness. [02/15/2019]

Paths to Literacy posted a great article for adapting braille books for early learners. It is never too early to start literacy skills! [03/08/2019]

NCDB : The Research Institute : Western Oregon University : 345 N. Monmouth Ave. : Monmouth, OR 97361
Contact Us: 800-438-9376 |

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