Meet Ava Bullis as She Transitions to a New School
Ava, who is in fifth grade and loves reading, playing sports, and spending time with friends, has combined vision and hearing loss due to Usher syndrome type 1. In the summer of 2016, her family moved from Old Bridge, New Jersey to Manchester, about an hour away. Their new house was larger and more accessible, but Ava's parents were nervous about the transition to a new school.
Carly, Ava's mom, is the Family Engagement Coordinator for the New Jersey Consortium on Deafblindness. She contacted the new district, met with administrators, and provided training to the school staff on Usher syndrome. Everyone at Manchester Township Elementary School was excited to have Ava as a student and worked hard to make sure her needs were met. Watch the videos to learn about everything that was done to make the transition successful—you'll hear from Ava's family, administrators and teachers, peers, and Ava herself. Check out the box below each video for additional resources (including several from Ava's family).
Meet Ava
Learn more . . .
Usher Syndrome
A factsheet from the National Institute on Deafness and Other Communication Disorders (NIDCD).
Usher Syndrome Coalition
An organization that works to raise awareness, accelerate research, and provide information and support to individuals and families.
A Family Decision
Learn more . . .
Request for Services Letter
Carly sent this letter to the district during the summer to tell them about Ava and formally request services for her.
Moving to a New Location
Information, tips, and a checklist from the Center for Parent Information and Resources.
Ava's Perspective
Learn more . . .
Behind a Closed Door
A poem written and illustrated by Ava.
Ten-Year-Old With Usher Syndrome Connects With Friends and Family Through iCanConnect
An article about Ava.
Making It Work: Supportive Administrators
Learn more . . .
Carly's Presentation
Carly used this when training the MTES staff on Usher syndrome.
New to Deafblindness? Five Tips for Administrators
From the Texas School for the Blind and Visually Impaired.
Making It Work: Teachers Get Ready
Learn more . . .
Strategies for Teaching Students Who Are Blind or Visually Impaired
From the Paths to Literacy website.
The Cochlear School Resource Center
Tools and material to meet the auditory accessibility needs of school-aged children with cochlear implants or significant hearing loss.
Old Friends, New Friends
Learn more...
Telling Classmates About Your Child’s Disability May Foster Acceptance
An information sheet from the PACER Center.
Helping Your Child Who Is Blind or Visually Impaired Learn How to Make Friends
From the FamilyConnect website, American Foundation for the Blind.
Meet Ava
Learn more . . .
Usher Syndrome
A factsheet from the National Institute on Deafness and Other Communication Disorders (NIDCD).
Usher Syndrome Coalition
An organization that works to raise awareness, accelerate research, and provide information and support to individuals and families.
A Family Decision
Learn more . . .
Request for Services Letter
Carly sent this letter to the district during the summer to tell them about Ava and formally request services for her.
Moving to a New Location
Information, tips, and a checklist from the Center for Parent Information and Resources.
Ava's Perspective
Learn more . . .
Behind a Closed Door
A poem written and illustrated by Ava.
Ten-Year-Old With Usher Syndrome Connects With Friends and Family Through iCanConnect
An article about Ava.
Making It Work: Supportive Administrators
Learn more . . .
Carly's Presentation
Carly used this when training the MTES staff on Usher syndrome.
New to Deafblindness? Five Tips for Administrators
From the Texas School for the Blind and Visually Impaired.
Making It Work: Teachers Get Ready
Learn more . . .
Strategies for Teaching Students Who Are Blind or Visually Impaired
From the Paths to Literacy website.
The Cochlear School Resource Center
Tools and material to meet the auditory accessibility needs of school-aged children with cochlear implants or significant hearing loss.
Old Friends, New Friends
Learn more...
Telling Classmates About Your Child’s Disability May Foster Acceptance
An information sheet from the PACER Center.
Helping Your Child Who Is Blind or Visually Impaired Learn How to Make Friends
From the FamilyConnect website, American Foundation for the Blind.