Meet Paul Uribe
Paul, who is six years old, has combined vision and hearing loss due to CHARGE syndrome. He lives in Northern California with his parents, Angelica and Paul. Always happy and energetic, he enjoys being outdoors; riding on swings, wagons, roller coasters, and horses; and playing with phones and iPads.
Angelica and Paul Sr. have made it a priority to connect with other special needs families. Several years ago they attended the CHARGE Syndrome Foundation's biennial conference in Chicago and met families and professionals from across the nation. They also communicate with other parents through Facebook groups and attend events hosted by their state deafblind project.
Watch the videos to meet Paul's family and get a peek into his day-to-day life. Be sure to check out the box below each video for additional resources.
Meet Paul
Learn more . . .
About CHARGE
An overview from the CHARGE Syndrome Foundation.
Bone Conduction Hearing Aids
From Boys Town National Research Hospital.
Communication
Learn more . . .
Picture Exchange Communication System (PECS)
A brief overview.
Speech and Language Therapy in CHARGE Syndrome
A one-page article from the CHARGE Syndrome Foundation.
Movement and Play
Learn more . . .
Activity at Home for Children and Youth Who Are Deafblind
An article with helpful suggestions of physical activities and modifications.
CHARGE Syndrome: Providing Physical Therapy
A 17-minute video from the Perkins School for the Blind.
Learning at School and at Home
Learn more . . .
CHARGE Syndrome: Teaching Strategies for Children
A 20-minute video from the Perkins School for the Blind.
Applied Behavior Analysis: A Parent's Guide
From Autism Speaks.
Community and Support
Learn more . . .
Get Support (CHARGE Syndrome Foundation)
Information about the Foundation's services for families.
“Wow, That Sounds Familiar”: Parent-Child Playgroups to Train, Support, & Build Connections
An article from the California Deafblind Services newsletter describing the playgroup Angelica and Paul were part of. Look for them in the photos!
Meet Paul
Learn more . . .
About CHARGE
An overview from the CHARGE Syndrome Foundation.
Bone Conduction Hearing Aids
From Boys Town National Research Hospital.
Communication
Learn more . . .
Picture Exchange Communication System (PECS)
A brief overview.
Speech and Language Therapy in CHARGE Syndrome
A one-page article from the CHARGE Syndrome Foundation.
Movement and Play
Learn more . . .
Activity at Home for Children and Youth Who Are Deafblind
An article with helpful suggestions of physical activities and modifications.
CHARGE Syndrome: Providing Physical Therapy
A 17-minute video from the Perkins School for the Blind.
Learning at School and at Home
Learn more . . .
CHARGE Syndrome: Teaching Strategies for Children
A 20-minute video from the Perkins School for the Blind.
Applied Behavior Analysis: A Parent's Guide
From Autism Speaks.
Community and Support
Learn more . . .
Get Support (CHARGE Syndrome Foundation)
Information about the Foundation's services for families.
“Wow, That Sounds Familiar”: Parent-Child Playgroups to Train, Support, & Build Connections
An article from the California Deafblind Services newsletter describing the playgroup Angelica and Paul were part of. Look for them in the photos!